Children's Tumor Foundation (Non-profit addresses neurofibromatosis 1 & 2)

[pinto]

Mission Statement

The Children's Tumor Foundation is a non-profit 501(c)(3) medical foundation, dedicated to improving the health and well being of individuals and families affected by the neurofibromatoses (NF).

The mission of The Children's Tumor Foundation is to:

•Encourage and support research and the development of treatments and cures for neurofibromatosis types 1 and 2, schwannomatosis, and related disorders (hereafter collectively referred to as "NF&quot ;

•Support persons with NF, their families, and caregivers by providing thorough, accurate, current, and readily accessible information;

•Assist in the development of clinical centers, best practices, and other patient support mechanisms (but not including direct medical care) to create better access to quality healthcare for affected individuals; and,

•Expand public awareness of NF to promote earlier and accurate diagnoses by the medical community, increase the non-affected population's understanding of the challenges facing people with NF, and encourage financial and other forms of support from public and private sources.

http://www.ctf.org/

[ChazII]

1. Thank you, Pinto

for spreading the word about this group.

Did you know that the DoD give money for research to this organization?

If anyone at DU knows someone who runs marathons or half marathons they can run for NF to raise funds for research.