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elleng

(130,908 posts)
Thu Feb 1, 2024, 07:55 PM Feb 1

Well waddya know! 'She was headed to a locked psych ward. Then an ER doctor made a startling discovery.

A physician’s gut instinct about a young woman led to a diagnosis that had been overlooked for years.

The 23-year-old patient arrived in the back of a police car and was in four point restraints — hands and feet strapped to a gurney — when emergency physician Elizabeth Mitchell saw her at a Los Angeles hospital early on March 17.

Chloe R. Kral was being held on a 5150, shorthand in California for an emergency psychiatric order that allows people deemed dangerous to themselves or others to be involuntarily confined for 72 hours.

She had spent the previous six months at a private treatment center receiving care for bipolar disorder and depression. Chloe had improved and was set to move to transitional housing when she suddenly became combative and threatened to harm staff and kill herself. Police had taken her to the emergency room at Cedars-Sinai Marina del Rey Hospital before a planned transfer to a mental hospital. . .

But something indefinable — Mitchell characterized it as “maybe gut instinct” honed by nearly two decades of practice — prompted her to order a CT scan of Chloe’s head to better assess her mental status.

When she pulled up the image, Mitchell gasped. “I had never seen anything like it,” she said. She rounded up her colleagues and “made everyone in the whole ER come look.”

“I was speechless,” she said. “All I could think was ‘How did no one figure this out?’ ”

It was then that Mitchell learned about the stunning oversight that had resulted in years of needless anguish for Chloe and her family.. .

Her mother, who practices yoga, thought it might boost her daughter’s mood. But she noticed that Chloe seemed wobbly, even in basic positions with her hands and knees flat on the floor. Her unsteadiness was the latest of physical changes that had begun in early adolescence. She tended to veer to one side when she walked, bumping into whoever was beside her. Sometimes she tripped climbing stairs. Although Chloe had been a good skier, around age 13 she fell more frequently and ultimately gave up the sport.

“Throughout high school I did have issues of not being able to walk in a straight line,” Chloe recalled. “It became sort of a joke.”

She also fainted periodically. In early 2018 she was taken by ambulance to an ER after fainting; no cause was found. When Alison followed up with the pediatrician, she said the doctor’s response was “Some people faint a lot.” . .

Beginning in the summer of 2020, Alison noticed that Chloe sometimes dragged her right foot when the pair took walks.

By fall, Chloe was spending her days on the living room sofa, inert. She forgot to bathe or brush her teeth. Once she urinated on herself while riding in her mother’s car. Her parents consulted a second psychiatrist who told them she needed to be hospitalized. In September she was admitted to a facility that provided intensive psychotherapy.

Stunning omission
Mitchell’s first call to Alison from the ER was brief. Her daughter was being evaluated, the doctor said, before her transfer to a psychiatric hospital an hour away.

Less than two hours later she phoned again with bombshell news. Chloe had a life-threatening condition that Mitchell characterized as “the most severe case of hydrocephalus I’ve ever seen.” She needed brain surgery as soon as it could be scheduled and was being sent to the neuro-ICU at Cedars-Sinai.

Hydrocephalus, popularly known as “water on the brain,” is caused by the accumulation of cerebrospinal fluid in cavities known as ventricles. Spinal fluid, which cushions the brain, is critically important to a wide variety of brain functions. Excess fluid was compressing the brain’s frontal lobes — responsible for memory, decision-making and emotion — against the inside of Chloe’s skull because it could not be reabsorbed. Without treatment, hydrocephalus, which can be present at birth or occur later in life, can cause brain damage, coma or death.

Alison had never heard of hydrocephalus. And Chloe, she told Mitchell, had never undergone brain imaging.'>>>

https://www.washingtonpost.com/health/2022/02/12/medical-mystery-mental-facility-ct-scan/

WOW! How awful for her! How lucky for ME! Another C.T. scan next week, so Doc can determine if rate of drain into my shunt is good, and Physical Therapy will follow.






33 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
Well waddya know! 'She was headed to a locked psych ward. Then an ER doctor made a startling discovery. (Original Post) elleng Feb 1 OP
Good news stories,so important. Get well soon Chloe. n/t SheilaAnn Feb 1 #1
Thank you for posting this LetMyPeopleVote Feb 1 #2
I'm in the mental health field and strongly believe Phoenix61 Feb 1 #3
Darned if I know! elleng Feb 1 #6
my youngest mopinko Feb 1 #13
I was just thinking about this today! When I get manic it feels as if my BODY is speeding Maraya1969 Feb 1 #21
there's so much we dont know. mopinko Feb 2 #24
That was absolutely the first question that popped into my mind. Susan Calvin Feb 2 #25
Excellent point Phoenix. People jump to conclusions and then stick by them no matter what evidence counters that view. Martin68 Feb 2 #26
I'm glad you're being taken care by compentant doctors, elleng! 70sEraVet Feb 1 #4
Thanks. Really good folks, it's their specialty, elleng Feb 1 #8
How awful. Fuc**** doctors just dismissed her. Utter incompetence. 58Sunliner Feb 1 #5
Thank goodness for Dr. Mitchell. democrank Feb 1 #7
That's all well and good to find the Hydro, but why did she have hydrocephalus? Stenosis? tumor? why? and mitch96 Feb 1 #9
'An MRI scan determined that Chloe's hydrocephalus was caused by aqueductal stenosis, elleng Feb 1 #11
What happened? I cannot read the entire story, I am not a member of the Washington Post. Escurumbele Feb 1 #10
Diagnosed with hydrocephalus, caused by elleng Feb 1 #12
Gift link here: spooky3 Feb 1 #16
Thanks. lamp_shade Feb 2 #29
Wow. Its amazing how some are not looked at properly Srkdqltr Feb 1 #14
Oh goodness! elleng Feb 1 #17
That happened with my mom BittyJenkins Feb 1 #15
and we ALL thank YOU so much, elleng Feb 1 #20
Remember, these are the same people that the police are going to ask "Was this a natural miscarriage or an abortion?" ck4829 Feb 1 #18
When I'm President or dictator for a day ... usonian Feb 1 #19
I found out at 65 years old that I don't have a right Delmette2.0 Feb 1 #22
WOW! elleng Feb 1 #23
I'm so glad this was caught and hope Chloe ends up OK sdfernando Feb 2 #27
Friend of mine fainting a lot and falling every week. Grins Feb 2 #31
OMG Grins sdfernando Feb 3 #33
Assuming she doesn't have health insurance. Nowadays, docs order MRIs for just about any pain. Glad she's getting care. Silent Type Feb 2 #28
When my youngest son was a teen appleannie1 Feb 2 #30
What most people don't realize is that there is limited space inside the skull tornado34jh Feb 2 #32

Phoenix61

(17,006 posts)
3. I'm in the mental health field and strongly believe
Thu Feb 1, 2024, 08:27 PM
Feb 1

First thing you do os rule out are any physical causes for problems. How did they miss the wobbly mess her mother described?

mopinko

(70,103 posts)
13. my youngest
Thu Feb 1, 2024, 08:46 PM
Feb 1

had a dx of ptsd, despite not having any ‘real’ trauma, no deaths, beatings, attacks. she’d had health issues, that were hard, but not anything that threatened her life, or required surgery.
she thought ppl were following her, and started refusing to go out, esp after dark. she spaced out for several minutes at a time. she spent time in a psyche ward. she had a full neuro/psyche exam.

then she finally start having overt seizures. she was hospitalized, wired to an eeg. 10 min later they came in an asked- did u ever have a bad head injury? y yes, at 5 yo, her brother had accidentally thwacked her head on a radiator. turns out it cracked her skull. i knew it at the time, but she showed no symptoms besides a ‘goose egg’.

she’s still trying to get control of her epilepsy. but here’s the thing- she’d seen a pediatric neurologist. for a while. she had sleep issues, and depression. she had an mri.

if i ran the world, intake to a psyche unit wd involve an eeg. and a sleep study.
and yes, a full physical. i have many bouts of depression which i’m quite sure were due to physical issues. finally got a dx of chronic fatigue. i also had a tbi at 6.

this is y i hate the term ‘mental illness’, as if the mind was separate from the brain, and the brain was separate from the body.
shrinks and neurologists dont talk enough. not nearly enough.

Maraya1969

(22,480 posts)
21. I was just thinking about this today! When I get manic it feels as if my BODY is speeding
Thu Feb 1, 2024, 10:21 PM
Feb 1

up. I have less need for sleep. I speak fast and move fast; it is hard to sit still. And then the mental symptoms come. But why is it only considered a mental illness when my entire body is experiencing it?

OK maybe something in my mind is making me speed up and slow down but it that where it starts? I don't know.

mopinko

(70,103 posts)
24. there's so much we dont know.
Fri Feb 2, 2024, 12:18 AM
Feb 2

hopefully some day they find biomarkers for this shit. the current check box stuff is just stupid.
i had a full neuro/psyche exam about 10 yrs ago, cuz i was losing words. the worst test i’ve ever been subjected to. they said my brain was fine, but the baseline is a normal iq person. i’m not. whole trains of thought were going off the track.

and the psyche part was shot through w sexist bias. t/f questions. u wouldnt rate a new pickle w an instrument like that. i walked out thinking- no wonder it was so easy to lock women up in the good old days.

the va now can tell the diff btn ptsd and cte. pet scans. i think there’s been work on other brain disorders, but not enough for dx, afaik.

Susan Calvin

(1,646 posts)
25. That was absolutely the first question that popped into my mind.
Fri Feb 2, 2024, 01:01 PM
Feb 2

How could nobody look into a possible physical cause for physical symptoms??

Martin68

(22,801 posts)
26. Excellent point Phoenix. People jump to conclusions and then stick by them no matter what evidence counters that view.
Fri Feb 2, 2024, 01:09 PM
Feb 2

Doctors, scientists, teachers, business leaders, politicians - no one is immune.

58Sunliner

(4,386 posts)
5. How awful. Fuc**** doctors just dismissed her. Utter incompetence.
Thu Feb 1, 2024, 08:30 PM
Feb 1

I have to wonder why no one suggested a neuro evaluation.

democrank

(11,094 posts)
7. Thank goodness for Dr. Mitchell.
Thu Feb 1, 2024, 08:31 PM
Feb 1

Hope Chloe recovers and begins a brand new life. Thank you for posting this.

mitch96

(13,904 posts)
9. That's all well and good to find the Hydro, but why did she have hydrocephalus? Stenosis? tumor? why? and
Thu Feb 1, 2024, 08:36 PM
Feb 1

can they fix it?
m

elleng

(130,908 posts)
11. 'An MRI scan determined that Chloe's hydrocephalus was caused by aqueductal stenosis,
Thu Feb 1, 2024, 08:40 PM
Feb 1

a narrowing between the ventricles that caused an obstruction. The obstruction, which was present at birth, was partial and her brain compensated until it no longer could, said neurosurgeon Ray M. Chu, who treated her at Cedars-Sinai.'

What is Aqueductal Stenosis?

https://www.uclahealth.org/medical-services/neurosurgery/conditions-treated/aqueductal-stenosis

Escurumbele

(3,392 posts)
10. What happened? I cannot read the entire story, I am not a member of the Washington Post.
Thu Feb 1, 2024, 08:38 PM
Feb 1

Anyone have a link where the full story can be read?

Thank you

Srkdqltr

(6,286 posts)
14. Wow. Its amazing how some are not looked at properly
Thu Feb 1, 2024, 08:57 PM
Feb 1

Some just blown off.
Had a cousin who was hydrocephalus. She had a huge head. PRobably 65 years ago no real treatment then. She was about 2 when she died. Haven't thought of her in a while.

BittyJenkins

(411 posts)
15. That happened with my mom
Thu Feb 1, 2024, 08:57 PM
Feb 1

She had a colloid cyst in her ventricles that blocked her spinal fluid.
She started having severe short memory loss. I brought her to the ER and they said she was senile and maybe I needed therapy because I couldn’t accept her natural aging.
I begged the doctor to do a CT and they saw the cyst. They said she would have died in a couple of days if she hadn’t had the surgery.
Bless my mom, when she woke up from surgery, the first thing she asked was “How is Meat Chicken?
That was our sweet huge white chicken that used to sit on our duck’s eggs to help her out.

Anyway it was such a good feeling to know she would be ok.
So glad you have your drain!
Take care and then some.

ck4829

(35,076 posts)
18. Remember, these are the same people that the police are going to ask "Was this a natural miscarriage or an abortion?"
Thu Feb 1, 2024, 09:03 PM
Feb 1

usonian

(9,802 posts)
19. When I'm President or dictator for a day ...
Thu Feb 1, 2024, 09:27 PM
Feb 1

Everyone gets a free complete scan once a year.

No more misdiagnosing serious illnesses as hangnails or low opium or testosterone levels!!

First diagnosis is perfect and no time and money wasted, nor useless treatments for the wrong damn problem, repeatedly.

I'll bet you it's cost effective, as well.

Working on a tricorder now.
Until then, scan we must.

See ya.

Delmette2.0

(4,165 posts)
22. I found out at 65 years old that I don't have a right
Thu Feb 1, 2024, 11:18 PM
Feb 1

pulmonary artery. The odds are 1 in 200,000. It was discovered when I had my first CT scan. An ER doctor noticed that my lungs looked different so she ordered the CT.
A pulmonologist said that might be the reason for my scoliosis. I knew something was weird as a teenager when one bra strap kept slipping. In 1974 when I was being fitted for my wedding dress the seamstress said "Oh, you have scoliosis, your right shoulder is lower than the left."
My OB/GYN said I have an S curve down my back. He called it scoliosis also. There was nothing to be done about it.
With baby #2 I ended up in the hospital for a week because of a sudden chest pain. Blood clot? No. My ribs were rubbing together so, no lifting anything over 25 pounds.
Lots of back pain for the next 40 years until my sister found a wonderful chiropractor. He understood that there was no moving my spine. He focused on the knotted muscles in my back. Three treatments later and I almost cried for feeling so good. I still get a treatment when ever I feel the back pain returning.
Without an observant doctor and the modern medicine of CT scans I never would have known.

sdfernando

(4,935 posts)
27. I'm so glad this was caught and hope Chloe ends up OK
Fri Feb 2, 2024, 01:12 PM
Feb 2

My jaw dropped when I saw this, " When Alison followed up with the pediatrician, she said the doctor’s response was “Some people faint a lot.” .....No No NO! People DON'T faint a lot!...that's NOT normal. WTAF!?!? That "doctor" should lose their license!

Grins

(7,217 posts)
31. Friend of mine fainting a lot and falling every week.
Fri Feb 2, 2024, 07:15 PM
Feb 2

For a couple years. Shortness of breath. Last month the FINALLY did a mri and cat scan.

Cyst on her heart the size of a lemon. Her surgery is next week.

I think this is malpractice. Influenced by insurance companies that don’t want to find anything they might have to pay for.

Silent Type

(2,903 posts)
28. Assuming she doesn't have health insurance. Nowadays, docs order MRIs for just about any pain. Glad she's getting care.
Fri Feb 2, 2024, 01:24 PM
Feb 2

appleannie1

(5,067 posts)
30. When my youngest son was a teen
Fri Feb 2, 2024, 06:27 PM
Feb 2

he started acting sometimes aggressive, sometimes depressed. One day he almost completely destroyed is bedroom.. I called the hospital closest to us that had a mental ward. They sent someone out and after viewing the destruction, she did the paperwork for an involuntary committal. That was only 5 days while they evaluated him. He came home after that with diagnoses that he was acting out because of the death of his brother and was to see a psychologist once a week for therapy. I took him for a couple months and he did not improve. Then one day he said " Mom, you are wasting your money. He falls asleep every week and I have to wake him at the end of the session." I did a little investigating and found out the doctor had narcolepsy. I went to a number of doctors. They told me he was probably experimenting with drugs. I knew better. Then one day, in a fit of rage he started breaking things in the kitchen. I called the police. The put him in handcuffs and drove him to a different hospital. By the time my hubby and I got there, he had already been examined. The doctor came out and said he did not think it was a mental problem, but was probably physical. We signed commitment papers knowing that since the doctor found a problem, he would not have to come home in 5 days.
They did a couple tests and found he had a lesion on his brain that was causing something like an epileptic seizure in the part of the brain that controls emotions. He had probably had a concussion at one time that did not heal. The doctor kept him for a couple weeks and put him on a drug used to treat epilepsy because the seizures were keeping it from healing and the lesion could not heal because of the seizures. Even after just a couple weeks he was a different person.
He had been kicked out of school so the doctor wrote a letter that I took to the school and he graduated with a tutor coming to the house.
He celebrated his 50th birthday last year, has a really good career and an epic work ethic. He was weaned off the drug after 18 months.
It had taken over a year of doctors giving the wrong diagnoses. During that time he punched holes in almost every door in the house, broke a lot of furniture, tried to drown himself in our pond, been kicked completely out of school and any little thing would set him off.
So Cloe is not the only person that was treated wrong. I am really glad she found a good doctor. It is a shame it was not sooner.

tornado34jh

(922 posts)
32. What most people don't realize is that there is limited space inside the skull
Fri Feb 2, 2024, 07:41 PM
Feb 2

When an injury occurs, one of the first things to occur is swelling. Now if this occurs say in the arm or leg, it can swell up with some room to spare except in really severe instances such as compartment syndrome. Needless to say, that is not the case for the brain. The skull is incompressible, at least when it get to adulthood. In children, infants in particular, the sutures have not fully closed, so sometimes the head can expand and change the shape of the head. Otherwise, the increased pressure by the cerebrospinal fluid and the brain can lead to dangerous increases of intracranial pressure since it can't expand.


I am surprised this person didn't develop brain herniation, which a potentially deadly complication where due to high intracranial pressure, parts of the brain are forced/squeezed across different structures. Especially deadly are uncal and tonsillar herniation, where they can cause pressure in the brain stem, the area that controls breathing and heart rate. This is especially common in traumatic brain injury, such as from car accidents, large falls, etc. Eventually if the pressure gets too high, (i.e. the intracranial pressure becomes higher than the cerebral perfusion pressure), it starts cutting off blood supply to the brain, likely leading to neurological disabilities or brain death. The brain is packed very tight in the skull with not a lot of room to spare.

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