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CTyankee

(63,912 posts)
Wed Nov 11, 2015, 05:22 PM Nov 2015

I have a very bad case of Shingles...

Went to to my doc today. It's the worst case he's ever seen. And it is very painful. I will not get healed for a month, he said. He put me on an anti-Shingles med and a good, strong painkiller.

My neck, shoulder, back and chest running down my right side only is now in the pustule stage. I was traveling over the weekend when it started to develop and my doc's office was closed. By the time I reached him I just decided I'd wait til I got back to come by his office. He'd already prescribed me the anti-Shingle med at my local pharmacy and wrote me one for the painkiller in his office which I have filled.

Once this is over I plan to get a Shingles vaccine. I never want to experience this pain and agony again. The vaccine costs $245 and is not covered by Medicare! But it's worth it never to have to experience this again.

If you are over the age of 60 get the vaccine for god's sake! Don't let the cost get in your way (like I did, stupidly). It is a helluva way to spend a month of your life. You don't want to experience it, believe me...

43 replies = new reply since forum marked as read
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I have a very bad case of Shingles... (Original Post) CTyankee Nov 2015 OP
I am curious which painkiller was prescribed for this, as I have heard this is extremely painful randys1 Nov 2015 #1
it's the one that is a combination of oxycodone and aceteminophin. CTyankee Nov 2015 #7
Thanks, just called my pharmacist, I had the shot in 2011 and was under randys1 Nov 2015 #14
Bummer. Hope you feel better soon. tanyev Nov 2015 #2
Sorry to hear. It's unfortunate the vaccine isn't covered. Hope you get to feeling better soon! think Nov 2015 #3
I hope you heal and feel MUCH better! no_hypocrisy Nov 2015 #4
I have a co-worker, in his mid 30's, who came down with a bad case. Take care. n/t Tarheel_Dem Nov 2015 #5
I have had reports that the vaccine is only 50% effective, truebluegreen Nov 2015 #6
I'm so sorry, it sounds really miserable. Warpy Nov 2015 #8
A friend of ours said he got his for $160 and we are going to follow up with him. CTyankee Nov 2015 #9
Oh my dear DU friend, get well soon! longship Nov 2015 #10
thanks, dear. Please get the shot, tho. CTyankee Nov 2015 #12
My mom had the vaccine and still had the shingles. Sienna86 Nov 2015 #11
I have Medicare + BC/BS. Got the shot for $25. A good friend got shingles NCjack Nov 2015 #13
I understand how you feel.... 49jim Nov 2015 #15
been there, done that grasswire Nov 2015 #16
What a bummer. brer cat Nov 2015 #17
I had the same severity you describe. My doc said the same thing, about how bad it was. dixiegrrrrl Nov 2015 #18
I don't have what you experienced. For onething it's primarily on the right side of my face CTyankee Nov 2015 #31
Sorry, I musta mis-read. dixiegrrrrl Nov 2015 #37
well, I just talked with my dtr who reminded me that she had shingles 10 years ago CTyankee Nov 2015 #38
I have employer based insurance. sheshe2 Nov 2015 #19
I'm so sorry you're going through such pain! phylny Nov 2015 #20
Medicare part D covers the shingles shot. NV Whino Nov 2015 #21
Unfortunately, it does not, accordng to my doctor and my pharmacist... CTyankee Nov 2015 #22
Could it be based on your age? goldent Nov 2015 #24
No, I'm in the prime age category...mid 70s. CTyankee Nov 2015 #32
It does under part D NV Whino Nov 2015 #25
I don't know why my doc or my pharmacist didn't tell me that . I'll call them both today. CTyankee Nov 2015 #29
Is there any good reason this vaccine is NOT covered? Jim Lane Nov 2015 #23
I have no excuse really. I didn't do my homework. CTyankee Nov 2015 #30
so sorry. hope you feel better soon. DesertFlower Nov 2015 #26
A friend of mine had this recently. I picked up a tub of this stuff in UK for her. MADem Nov 2015 #27
I asked my doc about any lotions, etc I could use and he said no so I didn't press him. CTyankee Nov 2015 #35
My poor mom MFM008 Nov 2015 #28
Has your doc given you an antiviral shot like acyclovir? If you get that Nay Nov 2015 #33
My doc sees lots of shingles given the age of his patient population and he prescribed Valtrex. CTyankee Nov 2015 #34
It sounds like VAltrex does the same thing as acyclovir. Oh, my case was already Nay Nov 2015 #36
Actually I just checked to bottle and Valtrex IS an acyclovir...LOL... CTyankee Nov 2015 #39
Well, there you go! Nay Nov 2015 #40
Apple cider vinegar helped my husband LiberalEsto Nov 2015 #41
I asked about the shot at Walgreens last year. leftyladyfrommo Nov 2015 #42
My husband is checking with Medicare and our Optum coverage. CTyankee Nov 2015 #43

CTyankee

(63,912 posts)
7. it's the one that is a combination of oxycodone and aceteminophin.
Wed Nov 11, 2015, 05:34 PM
Nov 2015

Valtex is the anti-shingles pill.

randys1

(16,286 posts)
14. Thanks, just called my pharmacist, I had the shot in 2011 and was under
Wed Nov 11, 2015, 06:38 PM
Nov 2015

60 at the time, he says there is a new one coming on the market in two years that will be even better.

I had read that it was a one time shot, but not really the more I read it is only good for around 5 yrs.

So I will wait to get the new shot when it is available.

Good luck!

tanyev

(42,594 posts)
2. Bummer. Hope you feel better soon.
Wed Nov 11, 2015, 05:26 PM
Nov 2015

One of my co-workers planned to get the shingles vaccine at 60, but came down with it anyway in her late 50s. I find that very unnerving.

no_hypocrisy

(46,151 posts)
4. I hope you heal and feel MUCH better!
Wed Nov 11, 2015, 05:26 PM
Nov 2015

I often consider that shingles was one of the curses Job had to endure.

I went through a virulent case of chicken pox (shingles lite) when I was 26. I looked diseased and medieval. I could only soak in a tub of oatmeal bath to help speed the healing. I avoided infection the best I could. The vesicles were everyone and I do mean everywhere.

Take good care.

 

truebluegreen

(9,033 posts)
6. I have had reports that the vaccine is only 50% effective,
Wed Nov 11, 2015, 05:34 PM
Nov 2015

not that a 50% chance of lessening the occurrence or recurrence wouldn't be worth it (I had them last year and still get twinges), just a head's up.

Warpy

(111,317 posts)
8. I'm so sorry, it sounds really miserable.
Wed Nov 11, 2015, 05:37 PM
Nov 2015

Do keep it all covered (thank goodness it's finally winter) because those pustules will burst and the liquid in them is infectious. Anyone who is either unvaccinated or in need of a booster is at risk of catching chicken pox.

I honestly don't know how I've avoided shingles, I had chicken pox, I'm immunosuppressed, and I'm on Prednisone. In my case, it's laziness, one has to make an appointment to get that vaccine around here since few can afford it and it's rarely kept in stock.

CTyankee

(63,912 posts)
9. A friend of ours said he got his for $160 and we are going to follow up with him.
Wed Nov 11, 2015, 05:43 PM
Nov 2015

Hubby wasn't going to get one but after seeing what I am going through and what i look like he is going to!

Doc said his own shot wasn't painful at all. He said he had more trouble with his flu shot this year. It wouldn't matter if it was painful because it would only be a moment and if it is at the very least preventable it's worth it...

longship

(40,416 posts)
10. Oh my dear DU friend, get well soon!
Wed Nov 11, 2015, 05:49 PM
Nov 2015

I send my best wishes to heal soon. A lot of good that will do! Nevertheless, suffice to say that I will be thinking of you.


CTyankee

(63,912 posts)
12. thanks, dear. Please get the shot, tho.
Wed Nov 11, 2015, 06:02 PM
Nov 2015

And, for all my art friends out there, I'll be back in another week or so. I just can't concentrate enough on it now...

Sienna86

(2,149 posts)
11. My mom had the vaccine and still had the shingles.
Wed Nov 11, 2015, 06:02 PM
Nov 2015

I've been hearing a lot of anecdotal reports that people are coming down with shingles after receiving the flu shot. I'm a big believer in the flu shot, but it does interest me.

NCjack

(10,279 posts)
13. I have Medicare + BC/BS. Got the shot for $25. A good friend got shingles
Wed Nov 11, 2015, 06:26 PM
Nov 2015

and it attacked her eyes. It was so painful that she telephoned every person she knew over 60 and made them promise to get the vaccine.

49jim

(560 posts)
15. I understand how you feel....
Wed Nov 11, 2015, 06:59 PM
Nov 2015

I had a bad case of shingles about 17 years ago. I didn't know what it was or where it came from. I had it for about 4-5 weeks before it felt better.I went to the emergency room (on weekend...dr. office closed). I thought it was a reaction to seafood I had the day earlier. As soon as I took of my shirt the nurse said...Shingles! I got a shingles shot this year even though I had a case in the past. Get well....

brer cat

(24,590 posts)
17. What a bummer.
Wed Nov 11, 2015, 08:13 PM
Nov 2015

I had a mild case and it was bad enough. I hope the pain meds will keep you comfortable...a month is a long time to hurt.

dixiegrrrrl

(60,010 posts)
18. I had the same severity you describe. My doc said the same thing, about how bad it was.
Wed Nov 11, 2015, 08:26 PM
Nov 2015

What I found helped was wrapping the torso snugly . It actually helped with the pain caused by moving around.
I ripped up a sheet and mummified my torso, really made a difference.

There is a good chance you could have post-shingle nerve pain, given the area of the attack.
It's like a itch you can't scratch under the skin, and a deep constant, very distracting, ache.
Luckily, my doc knew about Amitriptyline ( generic for Elavil) which , in low doses, has been used for years for nerve pain.
Who knew?
And it does work, thank god.

You have my deepest sympathy..would not wish such an attack on my worst enemy.

Cheney, maybe....

CTyankee

(63,912 posts)
31. I don't have what you experienced. For onething it's primarily on the right side of my face
Thu Nov 12, 2015, 09:13 AM
Nov 2015

and neck, shoulder, and a bit on my back and chest. I don't touch it. I gently splash cool water on the face and just avoid that whole side of my face entirely. I don't want to touch it and then accidently touch my eyes. I had only a bit of nerve pain streaking down the right side of my head and face but that went away and now it's just the blisters on my neck that really are the most uncomfortable.

CTyankee

(63,912 posts)
38. well, I just talked with my dtr who reminded me that she had shingles 10 years ago
Thu Nov 12, 2015, 02:04 PM
Nov 2015

and she was not yet 40! She didn't get pain meds but wished she had.

So I'm checking with my doc to see if I could possibly be contagious at Thanksgiving. My dtr thought that once you are in the outbreak stage you've passed the point of being contagious...

sheshe2

(83,844 posts)
19. I have employer based insurance.
Wed Nov 11, 2015, 10:00 PM
Nov 2015

My shot was covered. My mom had shingles, her case was milder.

Feel better soon, so sorry you are so sick, CT.

phylny

(8,383 posts)
20. I'm so sorry you're going through such pain!
Wed Nov 11, 2015, 10:04 PM
Nov 2015

I work with children (and had the chicken pox as a child, of course) and I got the vaccine several years ago. The insurance company said, oh, you're under 60, we won't cover it, and I said "Thanks but no thanks, I'll pay for it myself."

I know for a lot of people it's a lot of money (at the time, I think I paid about $90) but from what I hear, it's worth it.

Heal up soon!

goldent

(1,582 posts)
24. Could it be based on your age?
Thu Nov 12, 2015, 02:19 AM
Nov 2015

In the UK, it will be paid for only for people in their 70s (not younger or older). Generally, the National Institute for Health and Care Excellence determines coverage on cost/benefit/risk.

NV Whino

(20,886 posts)
25. It does under part D
Thu Nov 12, 2015, 03:40 AM
Nov 2015
https://www.medicare.gov/coverage/shingles-vaccine.html

Shingles shot

How often is it covered?

The shingles shot isn’t covered by Medicare Part A (Hospital Insurance) or Medicare Part B (Medical Insurance). Generally, Medicare prescription drug plans (Part D) cover all commercially-available vaccines (like the shingles shot) needed to prevent illness. Contact your Medicare drug plan for more information about coverage.


Only if you don't have the drug plan, will it not be covered.

CTyankee

(63,912 posts)
29. I don't know why my doc or my pharmacist didn't tell me that . I'll call them both today.
Thu Nov 12, 2015, 09:07 AM
Nov 2015

I can't get the shot until this episode of shingles is finished which is weeks away but my husband is anxious to get one.

 

Jim Lane

(11,175 posts)
23. Is there any good reason this vaccine is NOT covered?
Thu Nov 12, 2015, 02:08 AM
Nov 2015

I'm not on Medicare yet, but soon after my 60th birthday I looked into getting the vaccine. My private insurance would not cover it. It seems very strange, with an increasing emphasis on prevention throughout the health care field, that this vaccine (even if only 50% effective) is treated as a luxury.

I'm also curious about why it's so expensive.

By contrast, the flu vaccine is pretty cheap (I often see it advertised for $25) and generally covered. After reading your post, I'd rather get the flu than get shingles.

As of January 1, my insurance will be with a different carrier (multiple problems with BC/BS affiliate in NJ). If they don't cover the vaccine, then I guess, based on what you write, I ought to shell out for it anyway.

So, all right, as (very small) compensation for your pain, you've badgered one more person into getting the vaccine! Thanks for the first-person account.

CTyankee

(63,912 posts)
30. I have no excuse really. I didn't do my homework.
Thu Nov 12, 2015, 09:09 AM
Nov 2015

But it is interesting that my doctor didn't mention it. He has had one and he is just 65...

MADem

(135,425 posts)
27. A friend of mine had this recently. I picked up a tub of this stuff in UK for her.
Thu Nov 12, 2015, 04:02 AM
Nov 2015


She said it helped enormously--I selected it on advice of a friend.

Turns out you can buy it on AMAZON. I don't think it is available in USA but I think it is similar to DESITIN.

For the nerve pain after the worst is over, she went for acupuncture, and that helped as well.

Feel better soon--it does suck.

CTyankee

(63,912 posts)
35. I asked my doc about any lotions, etc I could use and he said no so I didn't press him.
Thu Nov 12, 2015, 12:54 PM
Nov 2015

I guess he would have told me is something would help. I have some Calamine lotion onhand but if doc says no, then I follow his orders.

MFM008

(19,818 posts)
28. My poor mom
Thu Nov 12, 2015, 05:11 AM
Nov 2015

got it in the worst place imaginable.... she was lucky it went away after a couple weeks not a month. good luck.

Nay

(12,051 posts)
33. Has your doc given you an antiviral shot like acyclovir? If you get that
Thu Nov 12, 2015, 10:36 AM
Nov 2015

shot within 72 hours of onset, it will lessen the severity of your shingles. I feel for you!

The day after I turned 60, I got the shingles vaccine. Insurance paid half, I paid the other half ($110).

When I was 64 I got a mild case of shingles (left side of forehead, patch above left eye, left side of scalp). I raced to the doc, got the acyclovir, and over a month or so, it mostly went away. I still have the occasional ache in my left temple.

All you other folks, get the vaccine! Now!

CTyankee

(63,912 posts)
34. My doc sees lots of shingles given the age of his patient population and he prescribed Valtrex.
Thu Nov 12, 2015, 11:03 AM
Nov 2015

So I trust he's right on target with the meds.

I'm glad yours was a mild case. perhaps you won't get it again or if you do, it will be a mild case. I'm taking Advil for mild pain and Percoset at bedtime. I slept from 7 pm last night til 6 am today. I must have been exhausted. I think pain itself tires the body. I know it does me. It's almost as if the body uses everything to fight pain and then you just can't stand up any more...but the sleep helped a lot...

Nay

(12,051 posts)
36. It sounds like VAltrex does the same thing as acyclovir. Oh, my case was already
Thu Nov 12, 2015, 01:05 PM
Nov 2015

mild, thanks -- I feel like I got off easily. The doc and my eye doc said I could be feeling pains occasionally for a year. (!!!) And yes, I could get it AGAIN. And AGAIN. Nice.

I took mild pain killers as well, esp for the forehead pain/headache. At night I'd take a Diclofenac for a little more pain relief.

 

LiberalEsto

(22,845 posts)
41. Apple cider vinegar helped my husband
Thu Nov 12, 2015, 03:02 PM
Nov 2015

He applied water-diluted vinegar to his waist and also drank glasses of water with about a teaspoon of the vinegar mixed in.
Don't know whether it will help you, but in any case I hope it goes away ASAP.

leftyladyfrommo

(18,869 posts)
42. I asked about the shot at Walgreens last year.
Fri Nov 13, 2015, 08:47 AM
Nov 2015

I am on Medicare and have Humana and my cost would be $95.

I asked my doctor and he said he has seen 2 people who got shingles after the shot.

I think I will get it as soon as I can afford it.

CTyankee

(63,912 posts)
43. My husband is checking with Medicare and our Optum coverage.
Fri Nov 13, 2015, 10:12 AM
Nov 2015

We might be able to get this straightened out...

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