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Related: Culture Forums, Support ForumsUpdate on my move to assisted living.
Today I toured an Independent Living Community to ask questions and got to talk to residents in that form of communities that may be helpful to my husband and myself.
I have memory loss now and need help even in having the facility pick me and drop me off. I cannot remember how to get to practically every place I used to go. I can manage the trip to the supermarket but nothing else. This frightens me. I feel like I am slowly coming apart.
I am so grateful for those in the DU community who offered me tips on how to deal with this process. I will keep you up to date on that progress. Perhaps you will find this helpful to you in the future.
My daughter is designing the book I am self publishing based on the art essays I did here at DU from 2014-2016. I kinda had to organize it by the century of the artists which was a bit of a challenge but I got it done. I am investigating how much copies will cost and if feasible I will offer a limited the number of books I can distribute to DU members, my dear online family.
You are all wonderful and I love you.
CurtEastPoint
(18,644 posts)CTyankee
(63,912 posts)Perhaps others here can be helped by my story. I hope so...
sheshe2
(83,771 posts)CTyankee
(63,912 posts)elleng
(130,914 posts)and I'll be HAPPY to pay for such a book!
CTyankee
(63,912 posts)elleng
(130,914 posts)Will take me back/remind me of my folks' 'collection,' which led to my respect for art and artists I'm sure, and our relationship!
cbreezen
(694 posts)I look forward to your essays and send out a world of positive vibes.
CTyankee
(63,912 posts)When I find out how many books of those essays I can offer to DUers I will tell you on DU Lounge. I guess it will be first come, first serve. But maybe I can work out a system where you guys go first, after my family and friends.
It all depends on costs involved. Hope you understand...
cbreezen
(694 posts)Will keep following your updates.
procon
(15,805 posts)Printed books aren't the only option available to writers today. Ebooks are an exciting alternative to printed books and you can sell or gift your books to anyone in the world over the internet without printing or shipping costs, right from your desk.
Google for more info, but in the meantime here's a link to Amazon's direct publishing guide:
https://kdp.amazon.com/en_US/
CTyankee
(63,912 posts)Do they help you with the process? J am experiences mental issues due to ageing so I am not as smart as I used to be.
Can anybody help at all?
C Moon
(12,213 posts)I'm no expert, but I'll try to field any questions your daughter may have (I don't know how much she knows).
Be well yankee!
CTyankee
(63,912 posts)She'll be back to the book in mid September and we'll talk about how much she knows/doesn't know. Can you pm me with your name and phone number?
JohnnyLib2
(11,212 posts)Yup, I'm following you and learning how it is done. Wasn't able to respond to your earlier post about the decision and the visits but sure have been thinking about you and the whole process. Your candor is much appreciated, just like your posts in my 10 or so years with DU. You have the very best wishes -- and thanks--from here.
Fla Dem
(23,675 posts)I can only imagine the stress you and your husband are going through. It sounds as if your 3 children are there to help you along the way. I hope that brings you some level of comfort.
Docreed2003
(16,860 posts)Can't wait for your book! You will be in our thoughts as you make this difficult transition!
CTyankee
(63,912 posts)panader0
(25,816 posts)Your weekly art essays were wonderful and educational.
I tell myself, as I grow older, that I'm not really that forgetful,
I just have much more data in my mind now. And if my mind is anything
like my desk, it's quite unorganized.
I hope you have a smooth transition to your new place.
I would certainly purchase one of your books if possible.
Please keep posting here--you are much loved by all.
WinkyDink
(51,311 posts)does it not?
Thank you.
CTyankee
(63,912 posts)It can be terrifying. I lost my way recently trying to get to some place I always went before. I was terrified and had a panic attack in the car...
RestoreAmerica2020
(3,435 posts)curious given the many positive comments your work. Paz and happiness in your new place! The heart is the hogar, home.
livetohike
(22,144 posts)with you i can't wait for your book to be published .
CTyankee
(63,912 posts)and it won't be for a while.
I'll let you know.
livetohike
(22,144 posts)NurseJackie
(42,862 posts)lorispot
(1 post)I would be interested in anything you publish. I am a lurker but have so enjoyed your posts. If it is available, I would love to purchase a copy.
panader0
(25,816 posts)I love catching people on their first post.
DesertRat
(27,995 posts)Welcome
calimary
(81,268 posts)I'm intrigued by that book idea, too, CTyankee!
People in this DU family have wonderful talent! Photography, essays that are almost edible, they're so tasty, think pieces and research, satire, social commentary, first-person reporting and documentation, scientific input of all kinds - it's quite literally an embarrassment of riches. One-stop shopping here, for sure!
CTyankee
(63,912 posts)trump is ruining our lives. Thank god for DU now...
mahina
(17,659 posts)What a lovely first post. Aloha.
gopiscrap
(23,761 posts)Doreen
(11,686 posts)pnwmom
(108,978 posts)who can envision running out of funds some day - and perhaps needing to be in a nursing home on Medicaid -- should be aware of a few things.
There are people who are on the borderline of needing high levels of assisted care and qualifying for nursing home care. My mother was in this situation. We could have had her go to an assisted living place at the highest level of care and she had enough funds to last for maybe a year there. But if she had waited till all her funds had run out before she looked for a Medicaid spot in a nursing home, she would have had much more limited choices. Most nursing homes have a large majority of people on Medicaid, but they give admissions priority to private pay people (who are important to keeping the facility afloat financially).
Since Mom had enough money to apply to a nursing home as a private pay patient, she had a choice of excellent nursing homes, that all accept Medicaid once the private pay person runs out of funds. But they like to see at least 6 months worth of assets in order to accept a person as a private pay.
So my mother, by choosing a nursing home over the highest level assisted living, still had enough funds to apply for a private pay slot in an excellent, personalized nursing home with all private rooms. And when she eventually was switched to Medicaid, nothing changed. She stayed in the same room, with the same people caring for her.
Based on your postings, I realize you're not in need of the highest level assisted living care or nursing home care at this point in your life. But if you don't have unlimited resources, you and your daughter should pay attention to your finances so you don't inadvertently spend all your money in assisted living, with not enough left over to apply eventually to a nursing home as a private pay person. If you ever get to the point where you're at the highest level of assisted living care, it's better to switch to a good nursing home while you can still afford to enter it without Medicaid.
Good luck with your move!
Cary
(11,746 posts)Laura PourMeADrink
(42,770 posts)lots of coffee - know it sounds hokey - but my daughter-in-law's brother is a researcher in Chicago - he said that these two activities are the only two they are absolutely sure of that help memory loss. Novel reading - getting into another world - living someone else's life while reading is very good for the brain.
WinkyDink
(51,311 posts)Laura PourMeADrink
(42,770 posts)not - because you have the visual and you can hear the voices. A novel is ALL in your head.
pangaia
(24,324 posts)What are harmonic, melodic, rhythmic analysis?
Learn what double invertible counterpoint is.
metric modulation
spiccato vs detache
Sonata Allegro form
cancrizan
diminution and augmentation of a fugue theme
third middle entry in a fugue
why are the trumpet triplets in the opening of Mahler's 5th Symphony usually played slightly delayed and squeezed closer together than written?
what is transposition of Db piccolo
learn to read all the C Clefs (now THERE's ONE for ya.. if that doesn't drive you gaga you're all good))
What is going on in the 1st mvt of the Shostakovich 7th symphony
2 or 3 hammer blows in Mahler's 6th symphony? and why?
tempi considerations in Beethoven symphonies.... for example Rattle vs Furtwangler
should the timpanist substitute different pitches (the double bass line) in the 1st & 4th mvts of Dvorak's New World Symphony.. Same question for many places in Beethoven symphonies...
Compare the use of string vibrato in performing Baroque, Classical and Romantic Period music.
learn to play violin-- hey.. why not?
Playing classical music involves every possible part of the human organism...
CTyankee
(63,912 posts)You led me through the vibrato through all those musical periods and how they were important. Most of this memory is gone for me now but then I remember and always will...
pangaia
(24,324 posts)I had trouble finding my car in the grocery store parking lot.
SO-- I bought a red car?
Think about it..
Love you and all you taught me. My contribution to you was minescule by comparison,. :> ))
The FIRST post i remember of your's , or almost the first, I remember was a painting of Cy Twombley. I thought, My, what a weird name.
Although you never mentioned it, you also got me interested in a facebook page-- "I REQUIRE ART" -Not much discussion, BUT, OH the paintings I never knew.
Wishing all the best for you CT.. hope you will keep in touch here. and I definitely WILL BUY a book.. somehow....
CTyankee
(63,912 posts)Just let me know. I don't know how many of the books I can afford but it will be a first thing first come thing. If I have enough you will get one.
I have no memory of the Facebook page...
pangaia
(24,324 posts)You didn't tell me about the Facebook page, I found it because of your posts about art. You kindled my interest...
CTyankee
(63,912 posts)was called "Ah! the peonies." My daughter is using part of it on the cover of my book. It is gorgeous. She is very talented but has not returned to work on it. She was in her summer home in Chappaquiddick island and now is busy getting her kids off to college and high school. But it will get done and I'll post here about its avavailabilty. Thanks so much.
pangaia
(24,324 posts)THAT was the art class' that got me hooked on your discussions !!
AND it was the post that later led to my love Raoul Dufy and Emile Nolde!! I had never heard of them.
I actually did buy a very high quality litho (1960s) of one of Dufy's 'regatta" paintings. all that BLUE..
Did my research and my art educated sister helped....It's the real deal...
I have been looking everywhere for a high quality lithograph of THIS .. without luck. There are many similar, but I want THIS one. :> ))
https://www.facebook.com/permalink.php?story_fbid=477489832447074&id=158652700997457
I did by a cheap one on Ebay for $13. just to have it. If you have any idea where I could find a really good litho...... :> )
Thank you so much for all you gave to all of us.....
CTyankee
(63,912 posts)pangaia
(24,324 posts)CTyankee
(63,912 posts)WinkyDink
(51,311 posts)brer cat
(24,565 posts)I loved your art essays and found them very educational.
I hope you find a place that is perfect for you and your husband. Take care!
samnsara
(17,622 posts)...stay safe and see if your family can set up a security cam in your room.
ret5hd
(20,491 posts)CTyankee
(63,912 posts)many we can afford to give away. If you want one let me know and give me your address, I will make sure you will get one, if they are not already all sent away.
ret5hd
(20,491 posts)blm
(113,062 posts).
TygrBright
(20,760 posts)I love your art essays and I will look forward to the book!
One thing I know from my mother's experience with memory issues is that anxiety can make them a whole lot worse, but it may be temporary. Once you resolve your living situation and have a chance to feel safe and welcome in your new place, they may ease somewhat, and/or slow. You may even have some restored confidence and function.
Be kind to yourself. Look at beautiful things. Let your eyes and heart feast on what is around you here and now.
encouragingly,
Bright
PatSeg
(47,458 posts)and I learned a trick a long time ago, to say something out loud if I want to remember it, like turning off the stove or locking the door when you leave the house. There are so many things I don't remember easily anymore, as the urgency to remember isn't always there. Winding down, I suppose.
That is so exciting about the art essays book! Good luck with it and the move.
CTyankee
(63,912 posts)waking up. Today, for instance, a home health aide is coming to bathe my husband so I know I have to be up and ready to assist in case he needs another towel or wash cloth. And I have other health issues to take care of -- nonmuller dermatitis, for instance, which requires a good deal of applications of anti-itch creams and ointments -- you wouldn't believe all the stuff I have to apply to most of my body just to get comfortable!
PatSeg
(47,458 posts)Then it gets on your clothes and linens. I frequently use magnesium oil for muscle cramps and it is very messy. I have to be sure to put socks on so it doesn't get on the sheets.
So these are the "golden years"? I think someone was being sarcastic when they came up with that one!
Hekate
(90,692 posts)I want to get in line for one of your books -- and would so gladly pay for the privilege.
CTyankee
(63,912 posts)Let me see how much each copy costs first. That will happen mid
September.
I appreciate your kind words, Hekate...
librechik
(30,674 posts)lovely dreams to you
longship
(40,416 posts)I've always been the math/science/tech geek. Although I have long been deeply into music, opera, etc. the visual arts weren't in my bag. Then I read your essays. Whoa! There's some real passion going on there. It's like listening to (or watching) Puccini's Tosca the first time.
I'll never be to your level on visual arts my good friend, but your passion certainly lit a spark in mine. That is something I will take to my grave.
Thank you. What you've done here is pretty damned wonderful.
Phentex
(16,334 posts)and your husband. We will be here for you.
greatauntoftriplets
(175,735 posts)My great-nephew published a volume of poetry through them recently. He paid about $3.50 for an about 50-page paperback volume that sold for $12.99. It's quite nice looking and he ended up making money on it.
I highly recommend it, based on his experience. http://www.blurb.com/
Best of luck to you!
kimbutgar
(21,153 posts)Don't get yourself overwhelmed by the move. Once you are in you will enjoy not having to cook or clean your unit. They even do your laundry!
pangaia
(24,324 posts)You English is perfect and I just bet your memory is better than you think... Just keep using it. :> ))
Would love to see you publish a book and hey,,if folks here would like one, which I am sure they/we/I do, can we pay for them somehow?
Vinca
(50,273 posts)sinkingfeeling
(51,457 posts)Honeycombe8
(37,648 posts)CTyankee
(63,912 posts)And I'm not going anywhere just now. I have to sell my house.
Honeycombe8
(37,648 posts)The stores get rid of last year's models, use deals on certain ones to lure in holiday shoppers.
keithbvadu2
(36,809 posts)mainer
(12,022 posts)Hubby has elderly parents who needed much time to make the transition. Once they moved into their new place, they felt such a sense of relief. So many worries taken care of. I hope you will feel a big burden fall off your shoulders once you move.
Squinch
(50,949 posts)both, and it sets your mind at ease.
peacebuzzard
(5,174 posts)Since I saw one of your posts regarding downsizing, I refocused on how fast time evaporates. I have since been doubling down on my own progress, and you were the inspiration for that. Sending you my best,
countryjake
(8,554 posts)and will always value everything you taught us thru all of those beautiful threads...I personally discovered so much about Art, the artists, each period and movement, from you, CTyankee.
Every search you so painstakingly prepared for us each week, all of the amazing trips you shared with everyone here, each pilgrimage you'd made to stand in awe before some painting unreachable to me was a delight. You've been a long-time inspiration to seek and study and learn and I am forever grateful for that education!
I hope that you'll never forget that you're a DU treasure.
Wishing you all the best in this next journey.
CTyankee
(63,912 posts)I did what I wanted to do:turn you on to art
1 am thrilled that I did what I said i wanted to do!
I won't forget "what I did for love."
Marthe48
(16,963 posts)She had memory loss due to blockage in her carotid arteries, and couldn't have surgery because she had septic arthritis.
I got gift bags at the dollar store, one for each month, something that made that month stand out- like Christmas for Dec. Valentines for Feb. matching the month to an event as well as I could. Then I put things like paid bills and birthdays related to that month in the bag and put them in her closet. She was a clutter bug and liked to rummage in her stuff. I don't know if I helped her, but it helped keep some of her things straight and tidy.
I wish you the best of luck. There is a lot of kindness in people and you will have help exactly when you need it
voteearlyvoteoften
(1,716 posts)Be well. Hope your new life will give you lots of time to enjoy art and your sweetheart.
The Velveteen Ocelot
(115,706 posts)I've really enjoyed reading your essays.
yardwork
(61,622 posts)They meant a lot to me. I learned about paintings I had never seen, saw old friends, and got to talk about art with DUers. For years it was my favorite part of DU.
Thank you.
roody
(10,849 posts)I lived in a lovely facility, The Shores of Pleasant Hill, for 7 months. The food went from bad to worse.
PoindexterOglethorpe
(25,858 posts)I can't imagine just how hard it is. But you are being both brave and pro-active in figuring out where you need to be as you go through this life. So many people simply ignore this, and wind up in a huge crisis because they refused to consider the possibility that they might not be able to live on their own forever.
I'm now 69 years old, currently in excellent health and (so far as I can tell) still quite with it mentally. I'm also divorced and live alone. I have one living adult son. I also have decent financial resources, and I know I'm very lucky that way. I constantly think about what I'll do in the future, if I'll be in independent or assisted living. I honestly hope that I can find my way to a good independent living place that also has assisted living, nursing home, and memory care units, in case my health deteriorates significantly or I get dementia.
I've been told by various professionals that there's a window of opportunity for a person to move into assisted living, and if that window is missed it's almost impossible to get them to move. Or they don't live very long thereafter.
I've been reading your posts here for a very long time (I was here under a different name at one point) and I feel as if you're a friend of a sort. I do hope you continue to keep us posted on what you're doing. I know I appreciate learning about this process through you. And I hope you stay with DU absolutely as long as you can.
Raine1967
(11,589 posts)I admit, I missed this part of your postings here on DU.
CTyankee, You are among my favorite DU'rs and I wish you and your family the very best.
I would be honored to purchase your book.
and Love,
Raine
eggplant
(3,911 posts)It hangs on the wall in the bathroom next to the door. We both take am and pm meds. It looks like this:
8/20 - 8/26
......Mam Mpm Jam Jpm
S......44....43.....x.....x
M......42....41.....x.....x
T......40....39.....x.....x
W.....38............x
T
F
S
Ignore the dots, they are just to help things to show up correctly in my post.
We can each see if the other has taken their meds and can remind them. Actually, she puts a number on hers instead of an X because she uses an inhaler. She writes the number of doses remaining instead of the X, so we can double check it against her inhaler to see if she forgot to write it down. And we do our meds in weekly pill organizers for the same reason.
Sometimes we'll write other notes there, like if there is an appointment coming up, or maybe what date we started/stopped a med. I write down the last time I put a bleach tablet in the toilet tank, things like that.
It works wonders as a way to keep an eye on each other, and to remind us what the date is! Low-tech solutions are the best.
burrowowl
(17,641 posts)I really liked the Friday Art Quizzes.
I wish you and your husband the best.
Keep DU posted!
Greybnk48
(10,168 posts)I hate it that you are afraid and I hope you are able to quickly adjust to being a bit more dependent on those who love you and care for you.
I have enjoyed your posts and quizzes over the past several years, although there were some where I score a big fat zero, much to my chagrin! Thanks for bringing art to DU!
Beacool
(30,249 posts)I hope that you find soon the ideal facility for you and your husband.
fleabiscuit
(4,542 posts)Eyeball_Kid
(7,432 posts)mahina
(17,659 posts)Looking forward to staying in touch with you. Good luck with all, sister. Thank you for lighting the path. Aloha.
Solly Mack
(90,767 posts)Once the book is ready, please let me know.
I'll buy a copy - but you have to sign it.
sprinkleeninow
(20,249 posts)Prayers that you attain peace as you transition to a new life.
annabanana
(52,791 posts)Your Art History threads have been a true delight for me. They prompted me to go back to my dusty Art History textbooks and brush up!
MFM008
(19,814 posts)Perhaps not feel it.
But the hug is there!
mia
(8,361 posts)Your posts about your experiences and the replies have been very helpful in getting me to think about the future. I look forward to reading that you are safely settled in a new place. Glad that you are publishing your art essays too.
justhanginon
(3,290 posts)I always looked forward to your excellent essays and will always appreciate the effort it took to do the research and put them together. I know I gained knowledge of some artists works that I had not been aware of.
Again, all the best to you in the future.
CTyankee
(63,912 posts)karynnj
(59,503 posts)I hope that you find a place where you have a community that will welcome you and appreciate what the two of you bring. I have always enjoyed your well written intelligent posts. Best wishes as you make this decision.
left-of-center2012
(34,195 posts)My doctors say I have "vascular dementia".
Here are two groups on Facebook I have found helpful:
TIPS FOR VASCULAR, ALZHEIMER'S & MIXED DEMENTIA/ SUPPORT & INFORMATION
Dementia Information - Public Group
CTyankee
(63,912 posts)since my hands of often tremble. Some days are better than others. I will report what he says to DU folks...
hamsterjill
(15,220 posts)Please keep us posted on your move and how you like your new digs once you've settled in.
You are NOT coming apart. Your posts here on DU are ALWAYS together, and I always look forward to reading them.
CTyankee
(63,912 posts)Baitball Blogger
(46,715 posts)Praying that the memory loss is temporary. Will definitely pick up one of your books.
niyad
(113,315 posts)your lives.
your DU family is here for you, always.
broadcaster90210
(333 posts)nt
LiberalFighter
(50,931 posts)It gets more difficult as we age of course for many of us. It is not easy. But easier with family and friend support.
Think about the good you have done and experienced.
edhopper
(33,580 posts)I wish you all the best and hope you end up in a comfortable and nurturing situation.
I hope you will still come here and entertain us with your posts.
CTyankee
(63,912 posts)the holy mess of Trump...
edhopper
(33,580 posts)Mike Nelson
(9,956 posts)...I don't have any tips... but thanks for leaving tips for others. The book sounds great!
CTyankee
(63,912 posts)If you were you saw my essays every other Friday.
Mike Nelson
(9,956 posts)...keep writing!
CTyankee
(63,912 posts)Codeine
(25,586 posts)some of the absolute finest content ever produced by this community. Please do not underestimate how much joy and education you brought to us with your writings.
CTyankee
(63,912 posts)I hope to share my essays with others in whatever facility I wind up in. I could teach a class in art history perhaps if I could have a slide projector but I don't know how I could get the detail I used to put up on the essay (which I got off of the Internet). I have forgotten exactly how I did that -- it was an upload, download process. Perhaps a savvy tech person there can offer assistance. I'm sure I would enjoy it.
OriginalGeek
(12,132 posts)Your art threads have enriched my life and I eagerly look forward to buying your book.
CTyankee
(63,912 posts)from her summer home and can work on its design. Then maybe I'll know how much each copy will cost...I truly don't want my online community here at DU to have to buy my book. When I get it self published, I will see if I can distribute copies to my DU fans and I will sign each copy. I love you all so much.
sellitman
(11,606 posts)Never forget that.