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DFW

(54,436 posts)
Mon Mar 25, 2024, 05:41 PM Mar 25

When fate decides to take a crap on you, then kick you while you're down--or why I should never complain again.

Last night, we had dinner with an old friend of ours. My wife has known him for longer than I have, and I have known him for almost 50 years, when he was still a medical student.

He was always a happy guy, sometimes a little naïve, but fun, and the perfect guy to be a doctor, with a great ability to connect with patients, treat and reassure them.

He completed his studies, opened a practice, married and had two children. We were never out of touch.

Then, one day, he told us his wife had left him for a guy 15 years her junior. His kids took his side, and were appalled. But he eventually got over it, and remarried a very nice woman whom we liked very much. We were at their wedding. His practice was going well, and he dedicated several weeks out of the year to work for free in sub-Saharan Africa for Doctors Without Borders, usually Kenya or Sudan.

About eight years ago, that life came crashing to an end. He suffered a massive stroke, and then two minor ones after that. He was in a coma for about two months, and woke up a vegetable. He crawled his way back to consciousness, but couldn't move for months. He gradually recovered some mobility, but was, and remains, a physical basket case. His wife suddenly found herself a full-time nurse to an invalid, and though she has stuck with him, they have had to blow their savings trying to stay afloat. She has had to take a few short vacations on her own just maintain her sanity. State help is minimal, and he is terrified of being institutionalized. His son came down with a glioblastoma, and died at age 41, and his daughter hasn't been able to cope with her dad's new reality. She has broken off contact. In the meantime, he has also had melanoma in twelve places and parts of his body look like a patchwork quilt where malignancies have been removed. He is in the intermediate stages of Parkinson's disease as well. As a physician, he is perfectly aware of the awful shape he is in, as well as the prospects of recovery (none). He wavers back and forth between self-pity and shame at having to demand so much from other people. We tried to talk of old times and get his mind off his predicament for a while, but it is omnipresent.

Any time I think I might have problems, someone please remind me of my doctor friend.

63 replies = new reply since forum marked as read
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When fate decides to take a crap on you, then kick you while you're down--or why I should never complain again. (Original Post) DFW Mar 25 OP
Wow. MOMFUDSKI Mar 25 #1
Really horrible story Picaro Mar 25 #2
It is very frustrating. DFW Mar 25 #5
Whether we "know it" or not, we probably all have someone experiencing so much trauma that hlthe2b Mar 25 #3
Thanks for that DFW Mar 25 #4
Despite his past strokes and Parkinson, it sounds like his mind may still be sound... hlthe2b Mar 25 #15
We touched upon that DFW Mar 25 #17
Oh, that's sad. Still, if he starts, it might trigger more memories and at least be a remembrance for hlthe2b Mar 25 #19
Yikes. That's really, really awful. Ocelot II Mar 25 #6
His predicament puts a lot of negative things into perspective DFW Mar 25 #7
Yup. Brings to mind the story of Job, except I don't think God has anything to do with it. Ocelot II Mar 25 #9
I wish I knew why good, kind, giving people suffer while greedy, self-centered, blowhards live to ripe old age. sinkingfeeling Mar 25 #8
Well, for some much-needed encouragement, think of the quite elderly president we've got right now. calimary Mar 25 #32
If life seems jolly rotten, There's something you've forgotten JoseBalow Mar 25 #10
I don't think he has laughed or smiled in a long while, unfortunately. n/t DFW Mar 25 #12
I am sorry about your friend. I am glad he has you as a friend. LoisB Mar 25 #11
It's never enough, though DFW Mar 25 #14
It is a lot that you have remained his friend duhneece Mar 25 #20
Fifty years is a long time DFW Mar 25 #21
And yet I've seen it recently with a friend diagnosed with Lewy Body Dementia duhneece Mar 25 #25
I think those are called "fair weather friends". LoisB Mar 25 #28
I would think that both he and his wife are grateful for your friendship. You can't LoisB Mar 25 #27
I've never understood why life can be so different for people. KatyaR Mar 25 #13
I often think this is why the concept of God was invented. DFW Mar 25 #16
Prayers for your friend and his wife. Joinfortmill Mar 25 #18
Oh, my dear DFW . . . my heart goes out to you, your wife and your very ill friend. CaliforniaPeggy Mar 25 #22
He does, I'm sure, too DFW Mar 26 #40
An unsettling cross to bear. He needs cachukis Mar 25 #23
We would never break off with him. We're there for calls, but can't often come by. DFW Mar 26 #41
I cannot think of an uplifting thought Shoonra Mar 25 #24
I don't know how DW/OB is structured DFW Mar 26 #42
Can't count how many times growing up my Dad told me KS Toronado Mar 25 #26
Your dad was SO right, too. n/t DFW Mar 26 #43
Must have been a sharp poke with the reality stick. Sorry about your friend. And yes, a lesson for all of us PortTack Mar 25 #29
He is so lucky to have a friend such as you. chouchou Mar 25 #30
I don't think we are doing anything more than would anyone else with a heart. DFW Mar 26 #44
Thank you for the reminder. hay rick Mar 25 #31
I can't say that I disagree with that n/t DFW Mar 26 #45
What a shame such a good man has his life ending in such a horrible way. Fla Dem Mar 25 #33
Thanks. DFW Mar 26 #54
what a heartbreaker orleans Mar 25 #34
He knows we think of him, and that we care DFW Mar 26 #55
I'm so sorry such a good guy is suffering like this. It certainly makes me feel grateful.. CousinIT Mar 25 #35
"As much happiness as he can get" DFW Mar 26 #56
Dear DFW, I am so sorry for your friend and you. debm55 Mar 25 #36
Woah. What a pile up of Awfulness! Glad he has you as a friend. electric_blue68 Mar 25 #37
Oh my goodness. Poor man. yardwork Mar 25 #38
Whenever I think life is kicking me when I'm down FuzzyRabbit Mar 26 #39
We remind him of the good he has done DFW Mar 26 #58
Shutting up now Just Jerome Mar 26 #46
Shhh! Don't tell anyone, but I'm not the boss DFW Mar 26 #57
I know a woman neurologist that became a neurologist Niagara Mar 26 #47
You are such a good person & friend DFW . Quakerfriend Mar 26 #48
This life is very strange. Bluethroughu Mar 26 #49
If the hair can be split DFW Mar 26 #59
Or anyone with ALS... Trueblue Texan Mar 26 #50
I'm so sorry for your friend dlk Mar 26 #51
While nothing bad happens to evil people dalton99a Mar 26 #52
OH yeah. DFW Mar 26 #60
How tragic and how sad, and also, it is nice that you continue to keep in touch, try to help in any way you can, SWBTATTReg Mar 26 #53
My wife was a social worker all her professional life DFW Mar 26 #61
What can one say bernieb Mar 26 #62
I felt sorry for myself because I had no shoes... surfered Mar 26 #63

Picaro

(1,525 posts)
2. Really horrible story
Mon Mar 25, 2024, 05:48 PM
Mar 25

There are definitely times when you have to understand that there, but for the grace of god, goes any of us.

So sorry about your friend. I know you wish you could do something to fix things and know that you can't.

DFW

(54,436 posts)
5. It is very frustrating.
Mon Mar 25, 2024, 05:55 PM
Mar 25

There is no amount of money we can offer, no friends we can call to come wave a magic wand. This is his fate and no one can do anything about it.

hlthe2b

(102,357 posts)
3. Whether we "know it" or not, we probably all have someone experiencing so much trauma that
Mon Mar 25, 2024, 05:48 PM
Mar 25

puts our own in perspective. Important to realize. Important to remember.

Thanks for sharing, DFW, and my very best for some kindness, love and peace to surround your friend's remaining days--however long.

DFW

(54,436 posts)
4. Thanks for that
Mon Mar 25, 2024, 05:53 PM
Mar 25

We don't know how long that will be, of course. He has been living with this steadily worsening situation for the better part of ten years now, and is hanging on by sheer willpower. If he loses that, I think he will not be here long. There is nothing we can do or say except offer reassurances that he remains our friend no matter what, and he did seem to take solace in that. He already feels worthless and useless. It's the task of his friends to try to convince him otherwise.

hlthe2b

(102,357 posts)
15. Despite his past strokes and Parkinson, it sounds like his mind may still be sound...
Mon Mar 25, 2024, 06:14 PM
Mar 25

If so, perhaps you could encourage him to record his memoirs--whether a personal approach or a "look back"at memorable cases (in general terms) that he saw over years of practice. That could be both instructional for the next generation(s) of physicians and/or for the lay public and friends/family if he chooses to adopt a more simple and nontechnical rendering.

I say this after listening to the majority of an Audible audiobook that came across my stream as a free offering available on the platform. It is entitled "Cook County ICU" by Cory Franklin, MD. Now, I'm not saying it is the best example of such a book and if I were to critique it, I'd have a lot to say. But it is a nice example of someone like your friend taking the opportunity to remember back over his career and to offer insight (in this case, mainly to the lay public) on what that was like.

Perhaps he might be up for something like this--which could interest a student--even a high school student-- who may wish to pursue a future career in medicine-- to help him with it?

Just a thought.

DFW

(54,436 posts)
17. We touched upon that
Mon Mar 25, 2024, 06:19 PM
Mar 25

But his memory of events past, while mostly intact, has some gaps and errors. I don't think his memoirs at this point would be accurate enough to warrant preserving.

hlthe2b

(102,357 posts)
19. Oh, that's sad. Still, if he starts, it might trigger more memories and at least be a remembrance for
Mon Mar 25, 2024, 06:24 PM
Mar 25

his family.

I'm so very sorry for what is happening to him.

Ocelot II

(115,836 posts)
6. Yikes. That's really, really awful.
Mon Mar 25, 2024, 05:56 PM
Mar 25

Just goes to show that people don't necessarily get what they deserve in life, or deserve what they get. I'm so sorry about your friend.

DFW

(54,436 posts)
7. His predicament puts a lot of negative things into perspective
Mon Mar 25, 2024, 06:00 PM
Mar 25

Sometimes REALLY bad things happen to good people who have tried to do good all their lives.

sinkingfeeling

(51,473 posts)
8. I wish I knew why good, kind, giving people suffer while greedy, self-centered, blowhards live to ripe old age.
Mon Mar 25, 2024, 06:02 PM
Mar 25

calimary

(81,466 posts)
32. Well, for some much-needed encouragement, think of the quite elderly president we've got right now.
Mon Mar 25, 2024, 08:03 PM
Mar 25

Joe Biden is one example of someone living to a ripe old age who is NOT greedy, OR self-centered, OR a blowhard of any kind. I find Biden to be a shaft of bright sunlight breaking through a sky full of thick dark clouds and heavy fog. If nothing else, maybe he's there to be an "anti-Trump" - to remind us that not everybody out there is a selfish, mean-spirited, card-carrying asshole - young, middle-aged, or even eighty-something.

Sometimes it helps me to keep that in mind, especially when I think the donald is about to drive me MAD.

JoseBalow

(2,455 posts)
10. If life seems jolly rotten, There's something you've forgotten
Mon Mar 25, 2024, 06:05 PM
Mar 25

And that's to laugh and smile and dance and sing

DFW

(54,436 posts)
14. It's never enough, though
Mon Mar 25, 2024, 06:14 PM
Mar 25

After leaving him, we went back to our crazy, hectic but relatively intact lives. His will never again be that.

duhneece

(4,117 posts)
20. It is a lot that you have remained his friend
Mon Mar 25, 2024, 06:27 PM
Mar 25

Too many people stop talking, seeing, checking in…. not out of unkindness but because we all feel so inadequate in the face of such changes in our friends’ health
You are doing good!
I can and do complain about my son being in prison… but I always end up reminded of my friends who have children who have died. Yes, I still hurt and feel afraid but I am grateful that my son is alive

duhneece

(4,117 posts)
25. And yet I've seen it recently with a friend diagnosed with Lewy Body Dementia
Mon Mar 25, 2024, 06:44 PM
Mar 25

He is in early stages but has friends of 50 years who quit calling, visiting, phoning….he ran into one at grocery store and his friend of over 50 years said that he just didn’t know what to say.

LoisB

(7,231 posts)
27. I would think that both he and his wife are grateful for your friendship. You can't
Mon Mar 25, 2024, 06:57 PM
Mar 25

change his condition although I am sure you would if you could. Continue being his friend. Too many people are like his daughter.

KatyaR

(3,445 posts)
13. I've never understood why life can be so different for people.
Mon Mar 25, 2024, 06:13 PM
Mar 25

Your poor friend didn't deserve to have all these things happen. I wish life was a little more fair for most of us.

DFW

(54,436 posts)
16. I often think this is why the concept of God was invented.
Mon Mar 25, 2024, 06:17 PM
Mar 25

There is no rational reason we can come up with for such an injustice, so to ease the pain, a "higher power" was created to give it all meaning and purpose. It takes some fortitude to believe it's just "joss," as the Chinese put it, since that means there is no meaning or purpose for people like our friend--just rotten bad luck.

CaliforniaPeggy

(149,699 posts)
22. Oh, my dear DFW . . . my heart goes out to you, your wife and your very ill friend.
Mon Mar 25, 2024, 06:39 PM
Mar 25

How sad for all of you.

He surely benefits from your company and friendship.

DFW

(54,436 posts)
40. He does, I'm sure, too
Tue Mar 26, 2024, 06:46 AM
Mar 26

But at the end of the day, all we can do is visit and then get back to our own little universe.

I remember when we used to visit my grandfather in New York. He looked forward to those visits like gifts from Olympus on high, and adored his blonde great-granddaughters who used to like to cuddle up to him on a couch in his living room. You could feel his sadness when it was time for us to leave. When he was 101, I called him up and asked if he had time on the date we were planning to visit. He said, "of course I have time! Everybody else is dead!"

cachukis

(2,270 posts)
23. An unsettling cross to bear. He needs
Mon Mar 25, 2024, 06:39 PM
Mar 25

your friendship, regardless of when. He knows you have your life, still.

DFW

(54,436 posts)
41. We would never break off with him. We're there for calls, but can't often come by.
Tue Mar 26, 2024, 06:52 AM
Mar 26

He lives in Gelsenkirchen, about 40 minutes from where we live, and they are moving to Dortmund, where his wife is from. Apparently they got a more handicapped-friendly apartment. Dortmund is farther away, but if it's easier on him, then the move was the right thing to do. As a doctor, he knows that what happened to him could happen to any of us, but to have ALL of that happen to one person in the space of less then ten years is just a cruel set of circumstances. I can't imagine what goes through his head five minutes after we have said our good-byes and are on the road back to a life he knows he can never have again. Both my wife and I have extremely active schedules, and we are now both 72. He would give anything to match us, and we all know it--and we all know there is nothing any of us can do about it.

Shoonra

(523 posts)
24. I cannot think of an uplifting thought
Mon Mar 25, 2024, 06:43 PM
Mar 25

This is very sad indeed. I feel for him, his wife, his daughter, and for you.

Perhaps some of his colleagues from Doctors W/O Borders are unaware of his situation and might be induced to pay him a visit.

DFW

(54,436 posts)
42. I don't know how DW/OB is structured
Tue Mar 26, 2024, 06:56 AM
Mar 26

I don't think they are paired with others based on national origin, so if he was working in a team of four, they might have been from Germany (i.e. him), Japan, Australia and Argentina. An interesting combination, and probably intellectually stimulating, but not convenient for casual visits.

KS Toronado

(17,317 posts)
26. Can't count how many times growing up my Dad told me
Mon Mar 25, 2024, 06:57 PM
Mar 25

"No matter how bad you think things are going for you there's hundreds in worse shape" And I watched him
help a lot of those people out at his auto repair shop making life long friends.

PortTack

(32,793 posts)
29. Must have been a sharp poke with the reality stick. Sorry about your friend. And yes, a lesson for all of us
Mon Mar 25, 2024, 07:15 PM
Mar 25

DFW

(54,436 posts)
44. I don't think we are doing anything more than would anyone else with a heart.
Tue Mar 26, 2024, 06:58 AM
Mar 26

There are enough heartless people out there, we realize.

hay rick

(7,639 posts)
31. Thank you for the reminder.
Mon Mar 25, 2024, 07:59 PM
Mar 25

The universe owes us nothing. Life and health are given to us by an unknown benefactor and will be taken from us in a time, place, and manner not of our choosing. In the brief time between, our only super power is loving each other.

Fla Dem

(23,741 posts)
33. What a shame such a good man has his life ending in such a horrible way.
Mon Mar 25, 2024, 08:14 PM
Mar 25

I am sorry for you DFW, I know it must be a heartache for you. I'm sorry for his wife.

I just lost a friend of 40 years to a stroke she suffered in mid-December. Her right side was pretty much paralyzed and she could barely speak. She always had a sense of humor and still had it up to the time she passed about 2 months later, mid Feb.

It is never easy to see loved ones and good friends suffer and struggle as their lives come to an end.

Peace be to you and your friend.

DFW

(54,436 posts)
54. Thanks.
Tue Mar 26, 2024, 04:09 PM
Mar 26

I think my wife and have managed to find peace for by ourselves, though that does not translate to tranquility. Less than 12 hours after leaving our friend, I was already arriving at our office in the Netherlands for my workday there. Today, I was in Belgium all day, and tomorrow, I have to be in France all day. It is said there is no rest for the weary.

orleans

(34,073 posts)
34. what a heartbreaker
Mon Mar 25, 2024, 08:22 PM
Mar 25

i'm so sorry about your friend and what he is living with/going through.

i'm sorry you're going through it along with him (yet i understand why you stand by him -- and i think that it is wonderful that you are doing that)

my mom used to say "everything happens for a reason" which always drove me crazy. i had a young, beautiful friend who was murdered before her 18th birthday and the killer was never caught. my mother loved this girl -- it was obvious that she wasn't thinking of her when she made that "everything happens for a reason" remark.

perhaps she wished it was only that simple -- maybe it was her desire that life would make sense and she could understand it if only she could figure it out.

but from the time i was seventeen i understood that sometimes things don't always happen for a reason.
sometimes there is no fucking rhyme or reason to the crap that happens to people.
sometimes life is horribly "unfair" (but no one ever said "life is fair" anyway)

sometimes it sucks
sometimes it is an absolute heartbreaker


DFW

(54,436 posts)
55. He knows we think of him, and that we care
Tue Mar 26, 2024, 04:18 PM
Mar 26

But he is the living inside that shell of his former self. When he tells us, “I am a train wreck,” he’s giving us his professional diagnosis of himself as well as his sad assessment. We can only nod and press hand. We are not going to give him any phiny encouragement about getting better, because he knows better than any of us that he won’t. He truly wants to live, but he is miserable about living in the condition he’s in. We try to go over old times, of which there are many. It beats insincere expressions of false hopes.

CousinIT

(9,257 posts)
35. I'm so sorry such a good guy is suffering like this. It certainly makes me feel grateful..
Mon Mar 25, 2024, 08:27 PM
Mar 25

....for my good luck so far with health. I hate that some people have so much bad luck though - and more awful is that the poor guy is aware of the shape he's in.

I do wish him the best, as much happiness as he can get and when the time comes, a peaceful and painless passing.

And, I know it's heartbreaking for you seeing your friend of over 50 years deteriorating like that. Again, I'm so sorry.

DFW

(54,436 posts)
56. "As much happiness as he can get"
Tue Mar 26, 2024, 04:22 PM
Mar 26

Well put. It’s precious little, but we try to add our little contribution, and we know at least one of their (I am an honorary member) 50 year old urban commune circle visits as well, since he lives closer than we do.

electric_blue68

(14,933 posts)
37. Woah. What a pile up of Awfulness! Glad he has you as a friend.
Mon Mar 25, 2024, 08:32 PM
Mar 25

When I had to be in a hospital - visits, calls, and even get well cards; which I perched on my table got me through.

While, unless a set of miracles happen this won't be your friend's case I hope it brings him some comfort, and lessens the pain some.

yardwork

(61,703 posts)
38. Oh my goodness. Poor man.
Mon Mar 25, 2024, 08:51 PM
Mar 25

My heart goes out to him, and his family. And to lose a son to glioblastoma in the middle of all this. How cruel.

FuzzyRabbit

(1,969 posts)
39. Whenever I think life is kicking me when I'm down
Tue Mar 26, 2024, 02:07 AM
Mar 26

I remember that all in all I have had a charmed life. Never had much money, but I have been able to house and feed myself. That's more than many people in this world can do.
I feel for your friend. Tell him, for me, to remember the good that he was able to do and that his life was not wasted by any means.

DFW

(54,436 posts)
58. We remind him of the good he has done
Tue Mar 26, 2024, 04:32 PM
Mar 26

We remind him that no one can take his past benevolence away from him, and he does acknowledge that.

DFW

(54,436 posts)
57. Shhh! Don't tell anyone, but I'm not the boss
Tue Mar 26, 2024, 04:30 PM
Mar 26

The people who work under me think I’m the boss, but I give them pretty much a free hand to do whatever they want as long as the job gets done. The boss in my work life is in Dallas, 5000 miles and seven time zones away, and I like it like that. The boss in my home is my wife, but she’s a social worker by profession, so my leash is far less short than some.

Niagara

(7,659 posts)
47. I know a woman neurologist that became a neurologist
Tue Mar 26, 2024, 08:01 AM
Mar 26

when it wasn't common for women to become doctors.


She helped an abundance of people with their health issues. She would consult with other neurologists to get all input on a complicated situation.


She has a rare form of Parkinson's that ravages her dominant side of her body and is robbing her of her speech.


She doesn't have dementia at all but she can't do things for herself. She has 24/7 care at home.
Her adult children act as though she's a burden and are actively trying to take her home and place in her in a nursing home.


It's frustrating to listen and to watch her adult children threaten her and use the grandchildren as ultimatums.


I use to care give for her but now I stop by about once a week to clean and organize her home. I also help with Christmas decorating.

Quakerfriend

(5,452 posts)
48. You are such a good person & friend DFW .
Tue Mar 26, 2024, 09:51 AM
Mar 26


Every day we must be grateful for the good in our lives.

As Joan Baez said, “There but for fortune go you or I.”

Bluethroughu

(5,186 posts)
49. This life is very strange.
Tue Mar 26, 2024, 10:28 AM
Mar 26

The fact that he is still trying to live, is amazing. He has extraordinary optimism, while facing his reality. He wants to live for "something" inspite of himself.

I'm curious as to what that something he might say is, although I have my opinions as to what that might be, love.

He must love people, and if that means only from the sideline now, his optimism should be shared, and maybe he could eek out a new living speaking or writing about it.

DFW

(54,436 posts)
59. If the hair can be split
Tue Mar 26, 2024, 04:37 PM
Mar 26

He hasn’t given up completely, looks forward to vaguely planned future visits, but still is fully aware that there will be no recovery from where he is, either.

Trueblue Texan

(2,440 posts)
50. Or anyone with ALS...
Tue Mar 26, 2024, 10:51 AM
Mar 26

It's easy to get discouraged these days, especially with the state of our democracy. But then I look at nations like Afghanistan, North Korea, Russia...gives me perspective. I feel like so many health issues are just the luck of the draw. Your friend is a brave soul, but his wife is truly heroic.

SWBTATTReg

(22,166 posts)
53. How tragic and how sad, and also, it is nice that you continue to keep in touch, try to help in any way you can,
Tue Mar 26, 2024, 02:13 PM
Mar 26

we never know when it'll be our turn to help out an old friend, in their time of need. My best wishes and thoughts, towards you and your friends. I hope that others, reading your story, will realize the importance of making sure that should something terrible happen to them health-wise, that perhaps they've done what they can to help in any way, reduce the stress, perhaps minimize the drain on one's finances, etc.

My dad had Parkinson's, so I know the impact of this disease. It was hard but it was my dad. There were times where he, my Mom, and I still had moments together where we all laughed at some joke and such, this was so special to me, spending time (and what little time you have in reality w/ Parkinson's). I would go out and shop, pick up food etc., run errands, etc. for them so it was therapy for me too, in a way. We all contributed in a way (four of us kids).

May the powers that be, grant you all the energy of the Universe and the blessings that come forth. Thanks for sharing your story.

DFW

(54,436 posts)
61. My wife was a social worker all her professional life
Tue Mar 26, 2024, 04:43 PM
Mar 26

She was suggested as a model, but found the notion horribly boring. She kept that attitude right through today. It colors the life of everyone she touches, most definitely including me.

bernieb

(45 posts)
62. What can one say
Tue Mar 26, 2024, 05:04 PM
Mar 26

except the health care system in this country is totally screwed up. I am so sorry this happened to him. I wish there was something I could do to help.

surfered

(524 posts)
63. I felt sorry for myself because I had no shoes...
Tue Mar 26, 2024, 05:36 PM
Mar 26

...until I met a man who had no feet. Jewish Proverb

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