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midnight

(26,624 posts)
Thu Apr 23, 2015, 09:22 AM Apr 2015

Nazi doctors went on trial for experiments on humans, the world heard the term "research crime"

"The Tuskegee Study of Untreated Syphilis in the Negro Male was the longest experiment on human beings in the history of medicine and public health. Conducted under the auspices of the U.S. Public Health Service (PHS), the study was originally projected to last six months but wound up spanning forty years, from 1932 to 1972. The men were never told that they had the sexually transmitted disease.

The 600 black men in the study (399 with syphilis and a control group of 201) were the sons and grandsons of slaves. Most had never been seen by a doctor. When announcements were made in churches and cotton fields about a way to receive free medical care, the men showed up in droves. Little did they know the high price they would pay over the next four decades as they were poked and prodded by an endless array of government medical personnel. Even as some men went blind and insane from advanced syphilis, the doctors withheld treatment, remaining committed to observing their subjects through to the predetermined "end point" -- autopsy. To ensure that their families would agree to this final procedure, the government offered burial insurance -- at most $50 -- to cover the cost of a casket and grave.


The project did not stop until Peter Buxtun, a former PHS venereal disease investigator, shared the truth about the study's unethical methods with an Associated Press reporter. Congressional hearings into the conduct of the study led to legislation strengthening guidelines to protect human subjects in research. Fred Gray, a civil rights attorney, filed a $1.8 billion class action lawsuit that resulted in a $10 million out-of-court settlement for the victims, their families, and their heirs."


"Tuskegee legacy generates anger that hangs in the air like smoke. People are not laboratory animals. No one should suffer when a proven treatment is available, as penicillin was for syphilis by the early 1940s. Using people in medical research without their informed consent, and engaging in subterfuge to do so, is ethically unconscionable, particularly when the people are vulnerable and lack access to any other medical care."


http://www.thebody.com/content/art30946.html

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midnight

(26,624 posts)
2. Well they got an apology about 60 years to late. And much of the information around this study has
Thu Apr 23, 2015, 09:43 AM
Apr 2015

been re-written to suggest that no harm was intended when they were cleaning their bad blood.

Injections given at this link doesn't have a descriptor about what is being injected-http://www.cnn.com/2010/HEALTH/10/01/guatemala.syphilis.tuskegee/index.html

 

HockeyMom

(14,337 posts)
3. I can read between the lines, midnight
Thu Apr 23, 2015, 09:45 AM
Apr 2015

and see the hidden message in this post. I agree. We lose the right to informed consent, we lose everything.

midnight

(26,624 posts)
4. I'm as transparent as one can be. We can't allow experimentation to be seen as healthcare.
Thu Apr 23, 2015, 10:03 AM
Apr 2015

One has to be alert to the fact that not only Hitler was a ringleader in experimentation, but so is America. Not sure what all the reasons are for justification of experiments, but poor, black, politically bothersome, etc.... seem to pop up.

US apologizes for infecting Guatemalans with STDs in the 1940s

According to the study, more than 1,600 people were infected: 696 with syphilis.The tests were carried out on female commercial sex workers, prisoners in the national penitentiary, patients in the national mental hospital and soldiers. 772 with gonorrhea and 142 with chancres.

http://www.cnn.com/2010/WORLD/americas/10/01/us.guatemala.apology/index.html


midnight

(26,624 posts)
5. Oppression via Holocaust, Native Americans, Africans should make us more critical thinkers.
Thu Apr 23, 2015, 10:27 AM
Apr 2015

We should never assume because Hitler's medical crimes happened in the past- that medical experimentation is also in the past.

freebrew

(1,917 posts)
7. Since * decimated the FDA...
Thu Apr 23, 2015, 12:43 PM
Apr 2015

we have all been guinea pigs for big pharma. Vioxx, Celebrex, many others released without adequate testing.

Many of us have paid the price for believing the crap they sell every day.

midnight

(26,624 posts)
11. That's most likely because these scientist are asked to alter information.
Thu Apr 23, 2015, 11:44 PM
Apr 2015

"Out of the nearly 1000 scientists who responded, close to one-fifth or 18.4%, said they had "been asked, for non-scientific reasons, to inappropriately exclude or alter technical information or their conclusions in a FDA scientific document."

In addition, 40% of the scientists said they fear retaliation for voicing safety concerns in public and more than one-third said they did not feel they can express safety concerns even inside the agency.

The survey also found that only 47% think the "FDA routinely provides complete and accurate information to the public," and 81% agreed that the "public would be better served if the independence and authority of FDA post-market safety systems were strengthened."

In a complaint aimed at the FDA's Office of Regulatory Affairs, one scientist said it should "not ostracise scientists or black ball them because their foresight sees a problem with a drug, device, food, biologics, etc. that possess a potential hazard to health now or in the future."

http://www.lawyersandsettlements.com/articles/drugs-medical/FDA_Pharma-00282.html

MisterP

(23,730 posts)
8. all my German relatives are real leery about letting doctors do what they want
Thu Apr 23, 2015, 02:05 PM
Apr 2015

thanks to, y'know, a world war

midnight

(26,624 posts)
12. I can see where there would be a trust issue."US apologizes for infecting Guatemalans with STDs"
Thu Apr 23, 2015, 11:56 PM
Apr 2015
http://www.cnn.com/2010/WORLD/americas/10/01/us.guatemala.apology/index.html


This is the same time young healthy black men were being studied on in the south.
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