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slipslidingaway

(21,210 posts)
Fri Oct 30, 2015, 02:27 AM Oct 2015

We were once part of the middle class and what happened ...

we grew older and companies were less inclined to hire those close to retirement. That would have been OK until my spouse was diagnosed with acute leukemia, AML, that had progressed from MDS, that necessitated a bone marrow transplant, more accurately a stem cell transplant. Fortunately we had retirement saving and family support. Weathering the storm we sold our home after our son graduated high school and moved twice within a year to try and stabilize our financial condition.

We thought all was well until a few months later when we learned that my husband had relapsed and he subsequently had another allogeneic transplant. Because he was four years since years his last transplant the risks favored another transplant, we are fortunate that his relapse happened later rather than sooner. Still it places us on more uncertain grounds for the future, but that is another topic.

We are very fortunate to have insurance, although his fortune 50 company retirement benefits pay a portion of the premiums we have been left to pay the annual out of pocket maximum for the past 6 years of over 55,000.

Still we are fortunate to receive the care needed which has amounted to well into 6 figures.

We watched the Repub debate last night and could not help but laugh at Carson's figure of 12K per year, that may be fine for a twenty something, but when an significant illness hits, all bets are off.

Try making that annual out of pocket several years in a row and still see if you maintain that middle class status or if you might be moving/sinking to some other class.

Our HC system stinks, many people cannot afford access.

We lived with several people at the American Cancer Center Hope Lodge in NYC for several months who did not have access to best care. The stories we heard could break your heart, but we became friends with several people through the first transplant and then the second transplant that we will never forget and continue to see.

I really do not mean to complain, we are very fortunate! But I just want to say that even with that advantage so many people are still sinking! We are lucky, and you imagine the less fortunate who can barely pay a subway fare for treatment.

My heart breaks for those who do not have access to the proper hospitals and treatments, and in addition did not always have the necessary cab fare.

Not everyone will survive, but some just needed a fighting chance.

I began this about the middle class and access to HC, but somehow my mind strayed to those we met along the way whose outcome was less fortunate.


21 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
We were once part of the middle class and what happened ... (Original Post) slipslidingaway Oct 2015 OP
Your post is very moving gwheezie Oct 2015 #1
Thank you .... slipslidingaway Oct 2015 #5
Health care should be a human right. Live and Learn Oct 2015 #2
Yes, but we could have health care and/or prisons for profit??? nt slipslidingaway Oct 2015 #6
We can have health care, a truly just society with social and economic justice for all, Live and Learn Oct 2015 #8
Right. We can vote ourselves the right to lifetime healthcare. And should. Hortensis Oct 2015 #13
Still wonder why we allow health care for any if we can't offer health care for all. n/t jtuck004 Oct 2015 #3
Some people are inferior and not deserving??? nt slipslidingaway Oct 2015 #7
Some people actually believe that. Live and Learn Oct 2015 #12
We could spend the money for all, but we choose to enrich a few at the expense of the rest. The ones jtuck004 Oct 2015 #16
Hmm, "Health care for all or Health care for none." I like it. Live and Learn Oct 2015 #9
I'd just have to say, "Nope, can't do it. I gotta die - I ain't got the money." NBachers Oct 2015 #4
Everybody is. Some are just too ignorant to know it. nt Live and Learn Oct 2015 #10
Most people are just one major illness away from bankrupt. Downwinder Oct 2015 #15
Too often we make HC choices based on money ... slipslidingaway Oct 2015 #11
Yes! These days 66 is the beginning of what can be a very long and Hortensis Oct 2015 #14
Yes it can be, health and finances play a large role ... slipslidingaway Oct 2015 #18
REAGAN happened. he overturned the gains FDR made. that was his job. kill unions. kill the GOVT. and pansypoo53219 Oct 2015 #17
Yes Reagan happened, but also the Dems allowed the ideas of FDR to fall away ... slipslidingaway Oct 2015 #19
12k? lancer78 Oct 2015 #20
Did a quick search for the full trancript and came up empty handed ... slipslidingaway Nov 2015 #21

gwheezie

(3,580 posts)
1. Your post is very moving
Fri Oct 30, 2015, 02:54 AM
Oct 2015

So human, we are not statistics or percentages. Thank you for putting a human story to the effect of policies.

Live and Learn

(12,769 posts)
8. We can have health care, a truly just society with social and economic justice for all,
Fri Oct 30, 2015, 04:10 AM
Oct 2015

if we vote accordingly and insist upon them. Will we? Highly doubtful but I will never give up the fight. Nor, will Bernie.

Live and Learn

(12,769 posts)
12. Some people actually believe that.
Fri Oct 30, 2015, 04:19 AM
Oct 2015

There is a You Tube post of the Arizona "illegal alien" law protest where a women actually tells someone she supposes is undocumented that 'you people don't deserve health care.' Imagine someone actually saying that. It mortifies me that she is part of the human race let alone inhabits the same part of earth that I do.

 

jtuck004

(15,882 posts)
16. We could spend the money for all, but we choose to enrich a few at the expense of the rest. The ones
Fri Oct 30, 2015, 06:32 AM
Oct 2015

we throw under the bus deserve it just as much as the people who have it now. It could change, but too many are comfortable with the way it is. People who are comfortable don't usually start revolutions that lead much of anywhere, it seems.


NBachers

(17,122 posts)
4. I'd just have to say, "Nope, can't do it. I gotta die - I ain't got the money."
Fri Oct 30, 2015, 03:28 AM
Oct 2015

And at 66, I'm just one prolonged ache away from some serious news.

Downwinder

(12,869 posts)
15. Most people are just one major illness away from bankrupt.
Fri Oct 30, 2015, 05:07 AM
Oct 2015

Insured or not. If you go bankrupt first you can get health care. Either way you can kiss your assets goodbye.

slipslidingaway

(21,210 posts)
11. Too often we make HC choices based on money ...
Fri Oct 30, 2015, 04:15 AM
Oct 2015

66 is fairly young, my spouse is 63 and walks miles every day after two transplants.

The insurance companies probably hate him!


Hortensis

(58,785 posts)
14. Yes! These days 66 is the beginning of what can be a very long and
Fri Oct 30, 2015, 04:59 AM
Oct 2015

enjoyable part of life. That said, people with good healthcare are a lot more likely to live to enjoy it. The ultimate all men are created equal and endowed with rights to life, liberty, and pursuit of happiness issue.

As for HC choices, I know someone whose dad refused open heart surgery because he chose to leave his wife in the home they'd lived in for decades instead of selling it to pay medical bills. I'm guessing he wasn't a real joie-de-vivre type anyway, but he was in his right mind and eventually died. A monetary decision.

Slipslidingaway, I'm glad you guys are doing okay. I'm sitting right now in a little mobile home with pretty views in Florida. We bought it so my husband could fish all winter, but my own other reason was that I don't feel secure and like knowing if that things went wrong we'd have a tiny but comfy and pleasant place to go. If all else failed, it'd be one story , with okay utilities and no real winter heating bills, grocery, bank and bus a block away, fishing off the back patio. Of course, medical bills are my top 5 best guesses for the kind of "thing" that could go wrong.

slipslidingaway

(21,210 posts)
18. Yes it can be, health and finances play a large role ...
Sat Oct 31, 2015, 01:09 AM
Oct 2015

it is a shame about your friend's Dad. Although it is tough to be forced to sell and move, the choice to stay and not receive treatment never entered our minds.

Sounds as if you made a wise choice with your purchase, one you can enjoy now and also have as a back up plan if needed.

Thank you!

pansypoo53219

(20,981 posts)
17. REAGAN happened. he overturned the gains FDR made. that was his job. kill unions. kill the GOVT. and
Fri Oct 30, 2015, 04:07 PM
Oct 2015

this is what the reagan democrats got for their tax cuts & stop WELFARE. kill the net! WEEEEEEEEE.but tinkle down is dying.

slipslidingaway

(21,210 posts)
19. Yes Reagan happened, but also the Dems allowed the ideas of FDR to fall away ...
Sat Oct 31, 2015, 01:14 AM
Oct 2015

I was disappointed during the last HC debate to watch the Dems not even try to advance the idea of a national HC system.

slipslidingaway

(21,210 posts)
21. Did a quick search for the full trancript and came up empty handed ...
Sun Nov 1, 2015, 03:23 AM
Nov 2015

I'm sure it is there somewhere

Thought he said something about Medicare spending and dividing it by those who receive benefits and came up with 12K, not sure what his HC plan is, I will not vote for him.



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