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Related: Editorials & Other Articles, Issue Forums, Alliance Forums, Region ForumsRIP Sam Berns
Apologies if this has already been posted. I just found out that this young man died last week.
http://6thfloor.blogs.nytimes.com/2014/01/13/the-short-exuberant-life-of-sam-berns/
Sam Berns, an ordinary kid with extraordinary bravery
Sam Berns was trapped in a prematurely aging body, but to hear his voice was to be reminded that he was a teenager with a teenagers syntax, a teenagers interests, and a teenagers sense of possibility. In the opening minutes of Life According to Sam, the acclaimed HBO documentary released in the fall, he talked about how much he loved to play with Legos, and how, though he was terrified of roller coasters, he still wished he had the chance to try to ride one. He also said he didnt want anyone to feel sorry for him, because his life wasnt defined by a disease.
Berns, a senior at Foxborough High School, was 17 when he died last week of complications from progeria, an extremely rare genetic disorder that accelerates the aging process. He had gained some recent fame as a motivational speaker, with a widely circulated TEDx talk and fans among the Bruins and the Patriots. The HBO documentary raised Bernss profile even more.
His visibility helped others with progeria, and his parents, who are doctors, have also devoted themselves to finding a cure. The scientific breakthroughs theyve made through their Progeria Research Foundation are likely to help others with the disease, and to advance medical research on the aging process. But Bernss singular achievement was in reminding the world that patients, brave as they might be in the face of great obstacles, are also people with broad interests and broad lives. His voice will live on, poignantly and fittingly, as that of an ordinary boy.
http://www.bostonglobe.com/opinion/editorials/2014/01/15/sam-berns-brave-and-ordinary-kid/kBVxEu0sWDengAtyV5tD5L/story.html
Sam Berns was trapped in a prematurely aging body, but to hear his voice was to be reminded that he was a teenager with a teenagers syntax, a teenagers interests, and a teenagers sense of possibility. In the opening minutes of Life According to Sam, the acclaimed HBO documentary released in the fall, he talked about how much he loved to play with Legos, and how, though he was terrified of roller coasters, he still wished he had the chance to try to ride one. He also said he didnt want anyone to feel sorry for him, because his life wasnt defined by a disease.
Berns, a senior at Foxborough High School, was 17 when he died last week of complications from progeria, an extremely rare genetic disorder that accelerates the aging process. He had gained some recent fame as a motivational speaker, with a widely circulated TEDx talk and fans among the Bruins and the Patriots. The HBO documentary raised Bernss profile even more.
His visibility helped others with progeria, and his parents, who are doctors, have also devoted themselves to finding a cure. The scientific breakthroughs theyve made through their Progeria Research Foundation are likely to help others with the disease, and to advance medical research on the aging process. But Bernss singular achievement was in reminding the world that patients, brave as they might be in the face of great obstacles, are also people with broad interests and broad lives. His voice will live on, poignantly and fittingly, as that of an ordinary boy.
http://www.bostonglobe.com/opinion/editorials/2014/01/15/sam-berns-brave-and-ordinary-kid/kBVxEu0sWDengAtyV5tD5L/story.html
Sam meets The Dave Matthews Band: Clip from "Life According To Sam"
My philosophy for a happy life: Sam Berns at TEDxMidAtlantic 2013
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RIP Sam Berns (Original Post)
progressoid
Jan 2014
OP
lamp_shade
(14,834 posts)1. I'm so sad. What a courageous young man.
progressoid
(49,990 posts)2. ...
spanone
(135,832 posts)3. an inspiration to everyone.
bless him.