Lorenzo's Oil creator Augusto Odone dies

[joeybee12]

Augusto Odone, who rejected medical opinion and created an oil to save the life of his son Lorenzo has died.

The former World Bank economist died in Italy aged 80, said his family.

Augusto Odone taught himself enough science to invent a treatment for his six-year-old son after he was diagnosed with a neurological disease and given two years to live. Lorenzo eventually died aged 30.

The battle to help him was depicted in a 1992 Hollywood film, Lorenzo's Oil.

http://www.bbc.co.uk/news/world-europe-24676384

[elleng]

1. Sorry.

Just watched the movie again 2 weeks ago.

May 31, '08:

Lorenzo died at his home in the US state of Virginia on Friday - a day after his 30th birthday.
He was suffering from aspiration pneumonia, which was caused by food getting stuck in his lungs.
His father Augusto said: "He could not see or communicate, but he was still with us. He did not suffer... That's the important thing."

http://news.bbc.co.uk/2/hi/americas/7429221.stm

[Th1onein]

2. I watched this movie after I started studying my son's disease

It gave me hope that I could succeed and save my son. I could not, though I did manage to keep him with me a little longer than normal.

And, of course, I still study. My non-profit is about to test to see if the protein involved in the disease is a pump.