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so, i've never made any kind of beg here for myself. this isn't rly 1 either, but it is. updated.
Last edited Fri Apr 19, 2024, 08:07 AM - Edit history (2)
i will b doing the mswalk may 19th, in northbrook, il.
if u r inclined to help, pls go read my pitch.
https://events.nationalmssociety.org/participant/525188
ok, eta my pitch-
i’m walking toward a world free of ms
because this cruel disease stole my sister.
my sister patty passed away in 2018 after a decade in a nursing home, and a life under it’s shadow. dx’d after the birth of her 2nd child, she thankfully spent most of the next 20+ yrs in remission. but she never had another child. she dared not try to combine work and motherhood. and when she returned to the workforce once her son was an adult, it reared it’s ugly head. it took about a decade to fully disable her. it took a toll not only on her body, but her brain. her initial admissions to care were in the locked ward.
i walk w my dearest of friends, roberta miles, because she too lives in the shadow of this beast. but she does it with a style and grace that mostly able bodied me can only dream of. she sings, she tells stories, she makes art, she teaches, she produces several long running shows, including loose chicks monologue group. i had the pleasure of making my debut as a storyteller w the chicks at my urban farm, moah’s ark.
fortunately, roberta has had access to treatments that did not exist when my sister could have benefited from them. but she still struggles.
i want a world free of ms for her, and for every one who has to face this cruel killer.
because this cruel disease stole my sister.
my sister patty passed away in 2018 after a decade in a nursing home, and a life under it’s shadow. dx’d after the birth of her 2nd child, she thankfully spent most of the next 20+ yrs in remission. but she never had another child. she dared not try to combine work and motherhood. and when she returned to the workforce once her son was an adult, it reared it’s ugly head. it took about a decade to fully disable her. it took a toll not only on her body, but her brain. her initial admissions to care were in the locked ward.
i walk w my dearest of friends, roberta miles, because she too lives in the shadow of this beast. but she does it with a style and grace that mostly able bodied me can only dream of. she sings, she tells stories, she makes art, she teaches, she produces several long running shows, including loose chicks monologue group. i had the pleasure of making my debut as a storyteller w the chicks at my urban farm, moah’s ark.
fortunately, roberta has had access to treatments that did not exist when my sister could have benefited from them. but she still struggles.
i want a world free of ms for her, and for every one who has to face this cruel killer.
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