I had the dexascan today. not bad as I thought It would be

[demtenjeep]

that is to designate my bone loss




yesterday they took 9 vials of blood I have too much calcium and protein and a vitamin d deficiency. Never heard of that.



Tomorrow is my infusion.



Wonderful spring Break to me

[Lucid Dreamer]

1. I am not a doctor...

Sorry to hear that.

I thought calcium was good for bones. Is there a "too much" level also?

[Hekate]

6. Calcium is supposed to be in the bones, not the blood. That might be it.

[TreasonousBastard]

2. Dunno about calcium and protein, but D deficiencies seem to be...

the latest thing doctors are looking at. Maybe a lot of us aren't getting enough sunshine? The light from a TV or monitor is not a good replacement.

My rheumatologist suggested I take an additional 1000 units a day.

[MontanaMama]

3. Mine was super low.

I’m taking 6000 units a day. My doc said the further north you live the more likely you might be deficient.

[demtenjeep]

4. mine is likely due to the Crohn's disease

and the malnutrition because of it.

[vsrazdem]

5. Location doesn't matter. I live in Phoenix and mine is low. I just don't get out into the

sunshine enough. Too hot to go out in the summer.

[TreasonousBastard]

8. 6000's a lot. I already take 2000 in a multivitamin, for a total of 3000. But...

it sounds like us northerners who don't go outside much need the supplements.

[Hortensis]

7. Hey, you're moving ahead.

Tomorrow you'll hopefully have the info you need and also get the infusion. As you say, moving toward being normal again. Hope you're sleeping now.

[demtenjeep]

9. My K level was very low like 3 Got a new scrip 50,000 mg a pill

and I take one pill a week




Also, they are talking about changing from Remicade to Scalara as the remicade even with the solucorteff doesn't last long enough.

If they do that, it might be injection at home. That would be awesome.

I wouldn't have to miss days at work and my spouse could to the injection.

[Hortensis]

10. Whoa, 3 is low, all right. Incredibly better than high at least.

I'll be hoping Stelara (?) works for you. Sounds as if it could be...liberating.

[demtenjeep]

11. yes. If it is something we can do at home

I will be pushing for that.


it really sucks to spend 4 hours in the infusion center every 5 weeks

[Hortensis]

12. I was trying to imagine what it'd be like to have

to schedule my life around that every 5 weeks. I think I'd be resenting that relentless requirement to be there. No wonder you want out from under that. And someday you'll leave it all in the past.

[demtenjeep]

16. it sucks

and during the school year I have to take 1/2 days every 5 Friday afternoon.

Usually I end up in deduct because of it.


I take my tablet loaded up with concerts of bands such as Eagles, Doobie Brothers, Def Leppard and others and put in my earphones and put a pillow over my head and try to sleep.

[WeekiWater]

13. Someone very close to me recently....

It was from a long battle with diabetes. The final straw was calcium being released into the blood stream. I forget what they called it. That was after most eye sight was lost, multiple amputations, regular infections making their way into bones, etc. I had never heard of the calcium problem until then.

[spanone]

14. I take vitamin D daily per my doctor.

Have a good infusion day...

[demtenjeep]

15. thanks

one stick and 4 hours later...


I am trying to nap and spouse is using the instapot for pork chops

[spanone]

17. yummy!

[demtenjeep]

18. I am going to recommend they take those suckers out

I don't want to treat with pills.

I just want them out@



from my readings, I know understand why I gained and can't lose 30lbs since two years ago