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Home » Discuss » Archives » General Discussion (1/22-2007 thru 12/14/2010) Donate to DU
 
AutumnMist Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:11 AM
Original message
I need a friend tonight......
This month for whatever reason has been so hard on me physically. I hate to talk about my health all the time, but I am in pain again. And sitting here alone is so hard to do. My family is sleeping and that's a very good thing. I now have Parkinson's induced insomnia. LOL. So the nights I spend can be very long at times. God this fucking disease is so cruel. There is so much I would like to say, but I cant. Typing is difficult for me. I'm sorry if I am rambling. Just reaching out again. Thanks for listening. :hi:
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XemaSab Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:12 AM
Response to Original message
1. That sounds very rough
:pals:
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napoleon_in_rags Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:14 AM
Response to Reply #1
3. Yeah, we're here.
Edited on Thu Jul-31-08 02:14 AM by napoleon_in_rags
Parkinson's must be an incredibly difficult thing to go through. I've had some (mercifully) limited experience with neurological things and its the worst.
:hug:

edit: oops, sorry meant for OP
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villager Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:12 AM
Response to Original message
2. Take care. The DU night shift is here....
Does tea, warm milk, or anything else help?
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AutumnMist Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:16 AM
Response to Reply #2
6. Not really..
Its due to the chemical imbalance caused by Parkinsons. I have medication to help me sleep, but it doesnt work any longer. Thank you for saying hello it means so much. :)
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rwenos Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:14 AM
Response to Original message
4. May You Regain Your Health
My wife has MS. It sucks. Your condition sounds like it sucks too. Your words carry both the poetry of a sensitive soul, and the pain of a sufferer from a chronic disease.

May you have peace, sleep and wellness. Our prayers are with you.
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AutumnMist Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:19 AM
Response to Reply #4
9. Thank you
Prayer and friends are always appreciated with me. :hug: Please tell your wife that my prayers and thoughts are also with her and you as well. I know it can be so hard as a caregiver to struggle with the ones that you love.
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CaliforniaPeggy Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:15 AM
Response to Original message
5. My dear AutumnMist...
My heart goes out to you, sweetie...

How I wish I could help more than just with my words...

We've got your back...

:loveya: :hug: :loveya:
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AutumnMist Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:21 AM
Original message
Hello Miss Peggy
Its so nice to see you. You always bring a smile to my face. How are you girl?
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CaliforniaPeggy Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:26 AM
Response to Original message
15. I am well, thanks...
Edited on Thu Jul-31-08 02:28 AM by CaliforniaPeggy
Went to the open mic last night for the poetry reading, and they loved what I read...

I'll get the link for you...

BRB!

Here you go: It's a Requiem for Khashka...

http://www.democraticunderground.com/discuss/duboard.php?az=show_topic&forum=105&topic_id=7969312

:hug:
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Behind the Aegis Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:19 AM
Response to Original message
7. I understand insomnia.
Though not Parkinson's related, it can be a real pain in the butt. I hope you get some good sound rest soon and feel better. :hug:
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Wizard777 Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-02-08 01:01 AM
Response to Reply #7
60. Me too! I've suffered with it all my life. I know the road to La La Land very well.
After 48 hours without sleep your brain starts taking lil catnaps. After 72 hours you begin to halucinate. It just goes down hill from there. My longest bout was 5 days. I ended up in the hospital. I was electric and I was basically vibrating. The lack of sleep was begining to effect my nervous system. It didn't take a whole lot to set me off and wreck my whole world. Just drop a pin on the carpet and I could hear it hit. It was more than my tired mind could deal with. They gave me a shot of something to knock me out and I slept for almost two days. Insomnia is horrible. Especially Chronic Insomia. Which is what I have.
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Donnachaidh Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:19 AM
Response to Original message
8. pain can rob you of so much
And the worst is when it robs you of sleep. I've spent quite a few nights walking through the house, watching the others do what I couldn't, because of pain. Have you tried listening to music - soft music? Sometimes that gets me past the pain hurdle enough to sleep.

And do remember -- you're NOT alone. Lots of us out there. :pals: :grouphug: :hug:
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Liberty Belle Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:20 AM
Response to Original message
10. Have you tried taking vitamins and Co-Enzyme Q10?
Read Dr. Pearlmutter's works (I believe that was the name); he is a doctor who has done extensive research on nutritional therapies to help Parkinson's patients. I heard him speak at Scripps here in San Diego and his results were quite promising.

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AutumnMist Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:24 AM
Response to Reply #10
13. Thank you for the information
I will look into it. Could you be so kind as to email me the information or a link? Thank you again...I hope you have a wonderful night.
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GardeningGal Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 09:33 AM
Response to Reply #13
42. Hi Autumn Mist
I was just reading through this thread and thought I'd go looking for the link. I found this one that looks like it might be it but since I'm not the original poster, I can't guarantee it's the right one.

http://www.perlhealth.com/index.php
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Liberty Belle Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-02-08 12:41 AM
Response to Reply #13
57. Here's my article referencing this issue:
It ran in the East County Californian, which does not have an online edition. You can find more about Dr. David Perlmutter at his website: http://www.perlhealth.com/

DOCTOR’S ORDERS:

SCRIPPS CONFERENCE REVEALS DIET & SUPPLEMENTS
CAN DRAMATICALLY REDUCE RISKS OF HEART DISEASE,
ALZHEIMER’S, AND OTHER SERIOUS AILMENTS

By Miriam Raftery

Fish oil, vitamins, herbs and certain foods can prevent heart failure, Alzheimer’s and other serious diseases, halt cancer growth and lower healthcare costs in America, leading physicians and researchers revealed at a conference for medical professionals in San Diego.
Natural Supplements: An Evidence-Based Update, was sponsored by Scripps Center for Integrative Medicine and held at the Hilton La Jolla Torrey Pines January 19-21.
“The first thing we have to recognize is that food is medicine,” cardiologist Mimi Guarneri, M.D., co-founder of the Scripps Clinic for Integrative Medicine, told the East County Californian. “This is one area where western medicine fails, and it’s one area where we have the greatest capacity for change. I’m a firm believer that disease is preventable, particularly cardiovascular and also many neurological diseases, through nutrition.”
Obesity, now a national epidemic, causes inflammation--a “smoking gun” that can trigger heart disease, Alzheimer’s, diabetes and other serious diseases. By eating “superfoods” and foods with a low-glycemic index (such as berries and whole-grain breads), people can dramatically reduce their risk of developing these illnesses. “We now know there is an anti-inflammatory diet consisting of cold water fish, spices like turmeric, ginger, and green tea,” said Guarneri, who also advised eliminating coffee and white flour and eating complex carbohydrates.
Supplements such as fish oil capsules containing omega-3 fatty acids can further reduce inflammation and produce additional health benefits.
“Fish oil alone, taken by massive amounts of consumers, will drive down the cost of healthcare,” said Tom Aarts, publisher of Nutrition Business Journal. Increasingly, physicians are prescribing fish oil as a first-step for patients with moderately high cholesterol before resorting to prescription Staten drugs, which can cause muscle damage or neurological problems.
Researchers with the Lewin Group found that America’s healthcare system could achieve huge cost savings if key supplements were taken by consumers. Rather than treat diseases after they occur, use of supplements would actually prevent disease or injury. For example, calcium supplements could save $13.8 billion by preventing hip fractures in the elderly. Folic acid supplements taken by women of child-bearing age could prevent neural tube defects in infants, saving $1.3 billion.
Perhaps the most intriguing presentation was made by neurologist David Perlmutter, M.D., who revealed that Alzheimer’s, Parkinson’s disease, multiple schlerosis and other neurological diseases can often be avoided by following a “brain smart diet” and taking supplements.
“We never hear about that—prevention of Alzheimer’s,” said Perlmutter, author of BrainRecovery.com - Powerful Therapy for Challenging Brain Disorders, The Better Brain Book and Raise a Smarter Child By Kindergarten. An international expert in nutritional influences on neurological disorders, Perlmutter was awarded the Linus Pauling award in 2002 and has appeared on numerous TV news and talk shows.
He showed images of normal brains compared to brains of patients with neurological disorders. “Medicines treat smoke, the symptoms,” he said, revealing hot spots in the brains of Alzheimer’s and Parkinson’s sufferers. “They don’t treat the fire.”
He revealed a clear link between diabetes, which triggers inflammation, and Alzheimer’s.
How clear?
The risk of developing Alzheimer’s is 200% higher in non-insulin dependent diabetics than in people without diabetes, and 400% higher in insulin-dependent diabetics.
“These are modifiable risk factors,” Perlmutter said. He cited a Journal of Neurology report which concluded that taking Vitamin C and Vitamin E reduced the rate of developing Alzheimer’s by 78%. Moreover, patients with high-serum levels of beta carotene were found to have an 89% decreased risk of developing cognitive diseases.
Some supplements can even help patients who already have crippling diseases. “We intervene by giving Parkinson’s patients Co-enzyme Q10,” said Perlmutter, citing evidence that the supplement repairs mitochondrial damage. In one year, the rate of decline in Parkinson’s taking Co-Q10 slowed by 48%, with no serious side effects.
Some medications, such as Staten drugs commonly prescribed to lower cholesterol, actually deplete the body of Co-Q10. This can cause debilitating and often permanent muscle damage, as well as severe neurological problems. “If a patient must take Staten drugs, be sure to also take Co-Q10,” Perlmutter advised.
Many other prescription drugs deplete the body of Vitamins B-12, B-6, and folic acid, he observed, adding that a recent study suggests lower folic acid levels lead to increased risk of Alzheimer’s.
“Food can inflame the brain,” he added. For example, 1% of the population has a gluten sensitivity. Eliminating wheat and other products containing gluten can cut the risk of neurological diseases, including Alzheimer’s, in people with Celiac disease or gluten sensitivity. “We should be testing everyone for Celiac disease,” said Perlmutter. He described a child with Tourette’s syndrome, another neurological condition, who is now symptom-free after being put on a gluten-free diet.
Obesity itself raises the risk of developing Parkinson’s disease by a whopping 300%. Although Parkinson’s disease can also be caused by environmental causes such as exposure to pesticides, slimming down can dramatically reduce most people’s risk of developing the neurological disease. “The fatter you are, the poorer you do on cognitive testing,” Perlmutter added.
The neurologist advises eating a Mediterranean diet that is high in fruits, vegetables, legumes, and cereals, low in meats and dairies. Avoiding trans-fats, limiting alcohol and exercising regularly are also recommended.
DHA, an omega fatty acid in fish oil, “turns on the smart gene” observed Perlmutter, who advises its inclusion in the diet at all ages. Some infant formulas are now available with added DHA. In areas of the world where people consume high levels of fish, the rate of Alzheimer’s is significantly lower than in the U.S.
Perlmutter raised one troubling question. “Fish populations around the world are being decimated,” he noted. “What happens in 20 years, when we don’t have high levels of fish oil?”
Oncologist Mitchell Gaynor, M.D., discussed the role of foods and supplements to ease side effects of chemotherapy or even prevent cancer. Antioxidant vitamins (such as C and E) and compounds in soy, for example, trigger production of detoxifying enzymes in the body, which combat chemicals and other environmental toxins known to cause cancer. Too much white sugar and caffeine can increase inflammation and in turn raise the risk of cancer.
By contrast, consuming green tea, garlic, omega fatty acids, and cruciferous vegetables such as cabbage or broccoli can lower cancer risk. Curcumin, the yellow spice used in curry, has been found to inhibit carcinogens and growth of cancer cells.
A 2005 study found that curcumin even restricts growth of melanoma cells. Selenium, found in brazil and cashew nuts, lowered rates of prostate cancer by 62% and colorectal cancer by 50%, one study showed. A 2006 study at UCSD found that women who took 1000 units of Vitamin D lowered their risk of breast cancer by 50%. People who consume foods high in phytoestrogens can cut their risk of lung cancer in half, another study found.
“Green tea has many anti-cancer effects,” said Gaynor. An Antioxidant in green tea is 20 times more potent than Vitamin E and 200 times more potent than Vitamin C, he added. “Green tea also induces cancer cell death and inhibits angiogenesis, growth of new blood cells needed for tumors to grow.”
Not every supplement study had positive results. One large clinical study was halted in mid-stream after researchers found that beta-carotene was actually increasing cancer levels in smokers.
But overall, the prospect of preventing illness through natural means–foods and supplements derived from nature—appears promising and safe.
Each year, 100,000 people die in U.S. hospitals from taking prescription drugs that were properly used. That figure does not count those who die from improper usage (such as overdoses) or the many more who develop serious side effects from prescription drugs. While a few supplements have been linked to problems (most notoriously ephedra, which the FDA pulled off the market following 134 deaths believed linked to the popular weight-loss supplement), the vast majority of vitamins, minerals, herbal medicines and other supplements on the market have a long history of safety compared to prescription drugs.
Ultimately, improving your diet and adding supplements may be just what the doctor ordered--shifting the focus from curing disease to preventing it. This would lower America’s staggering health care costs and improve the health of our population, many medical experts predict.
“We fasten our seatbelts to prevent fatal accidents and brush our teeth to control tooth decay,” Gaynor advised doctors at the conference. “There are just as many things that you can do to prevent cancer in yourselves, your patients, and your families.”






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BlueIris Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:21 AM
Response to Original message
11. Oh, AutumnMist. I'm sorry; chronic illness is so unfair.
I just hope you are able to access the help that you need.
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Ghost in the Machine Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:24 AM
Response to Original message
12. From another chronic pain sufferer, I feel for ya...
I go days without sleep, too... I've got major nerve damage from a broken neck and two subsequent neck surgeries... plus having part of my spinal cord that has attached itself to a vertebra.... I quit taking meds for the pain a few years ago... they didn't help and only made me loopy

:hug:

Hope you get feeling better...

Peace,

Ghost

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AutumnMist Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:26 AM
Response to Reply #12
14. I hope you feel better as well....
Thank you for saying hello.

Autumn
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peacebuzzard Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:27 AM
Response to Original message
16. I have just spent over a year with dreadful side effects
of a chronic illness with concurrent multiple accompanying pain.
Have not posted much here on DU this year because of it, although I check in often.
I hope this evening brings some relief to you knowing you have some friends out here.

Many hugs.


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AndyTiedye Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:30 AM
Response to Original message
17. They Say McCain's Speeches Are Good for Inducing Sleep


though in some of us they induce :puke: instead.

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peacebuzzard Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:33 AM
Response to Reply #17
19. thanks for the laugh in the dark before dawn!!!
laughter is a great medicine !
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DarthDem Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:31 AM
Response to Original message
18. So Sorry

So sorry to hear that you're not feeling well. That's a cruel illness and I am sending the best thoughts and wishes your way for feeling better. There's a bright side, though - - many kind people around this wonderful place posted their sentiments right away. :) Best. Peace.
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Kaleko Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:35 AM
Response to Original message
20. The night owls are here
to keep you company, dear AutumnMist.






What I do when there's intense pain is, I fall deep inside myself, deeper than thoughts and even feeling, into the depths of just pure being. Then there is a natural falling asleep in that ease of just being. Know what I mean?

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curious one Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:36 AM
Response to Original message
21. Dear AutumnMist,
Very sorry to hear of your pain. My Prayers are with you.

Have you heard of "Energy Medicine"? Donna Eden's book maybe helpful for improving your health. There are Energy Medicine's practioners. Her website can give more information:
http://www.innersource.net/energy_medicine/energy_medicine_main.htm


Here some info on the book:

Amazon.com
This alternative-medicine self-help guide promises to teach you to help heal yourself and others using the body's own natural energies. Building on such diverse concepts as acupuncture and therapeutic touch, Donna Eden lays out a practical framework in Energy Medicine for flushing out and recharging the body's systems.
"This book will show you how to work with the electromagnetic and more subtle energies that give your body life," Eden writes, along with her husband, psychologist David Feinstein. "These energies form the foundation of your health."

For instance, if your head aches or feels clouded, energy may be stagnating there, so do the "crown pull" to release it. The book gives a detailed description of how to do this and other energy-fixing exercises, and provides time estimates and illustrations for doing the maneuvers.

Eden, who has practiced energy medicine for more than 20 years and has given classes around the world, also relates stories about some of her clients, including those with cancer and chronic pain. While Eden says people can help themselves and others with the techniques in the book, she urges them to seek professional care as well.

Energy Medicine includes chapters on various energy systems, ranging from the meridians to the chakras, the basic grid to the strange flows, and chapters on how such systems relate to pain and illness. It also includes an appendix listing organizations and Internet sites for other forms of alternative medicine, like naturopathy and qigong. The book is a useful guide for people interested in this form of alternative healing.

Book from amazon.com
http://www.amazon.com/Energy-Medicine-Donna-Eden/dp/1585420212/ref=pd_bbs_sr_1?ie=UTF8&s=books&qid=1217489170&sr=8-1

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Diane R Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:36 AM
Response to Original message
22. The DU never sleeps, you're not alone. Lots of good wishes and thoughts going out to your.
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Fovea Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:42 AM
Response to Original message
23. I understand.
I have post stroke pain that is there 24x7 on a scale from 3 to 8.

I hope you can find something beautiful to lose yourself in.

http://www.flickr.com/photos/cameraobscura/2715275941/

Be at peace.
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stevil Donating Member (108 posts) Send PM | Profile | Ignore Thu Jul-31-08 02:46 AM
Response to Original message
24. You have my thoughts
My Grandfather had Parkinson's. Try to think happy thoughts and you will find yourself asleep in no time. Rest well and post anytime you need a friend - see how many people care about you tonight?


:pals:
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otherlander Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:47 AM
Response to Original message
25. I'm here.
You're not alone.
:pals:
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Inchworm Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:54 AM
Response to Original message
26. I'm nekkid
and I feel the breeze of despair.

You rawk!

:yourock:

dang, I thought I'd type some cool stuffs...
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grasswire Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 02:58 AM
Response to Original message
27. some of the best old movies are on TV late at night...
...and in the wee hours. I'd fall asleep in front of the TV if I could.

Way out in the distance right now I can hear a train whistle. I always think, when I hear a train at night, how many people are up and working in the middle of the night. Those of us who can't sleep join those who must work in being awake. The trainman, the baker, the cabbie, the newspaper bundlers, the delivery drivers, the emergency workers, those who work in laundries, diners, and so many more. Awake, sharing the night.

We aren't alone in the night.
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Mnemosyne Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 03:11 AM
Response to Original message
28. I hear you, Autumn.
:hug:
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Hekate Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 03:18 AM
Response to Original message
29. Oh love, I'm sorry. I think of you & your family and include you in such prayers as I make...
Rest peacefully and soon -- and if you can't, the DU night shift is here, as always. :hug: and :grouphug:

Hekate


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orleans Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 03:18 AM
Response to Original message
30. hopefully you are sleeping by now. take good care--
gentle hugs and quiet goodnight whispers to you.
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Mind_your_head Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 03:20 AM
Response to Original message
31. Hello AutumnMist
There are many good people/friends you haven't actually "met in person yet" at DU. :-)

I know the internets aren't as good as touching people "with real skin", but here's a virtual hug for your anyway :hug:

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ZombieHorde Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 03:25 AM
Response to Original message
32. I hope you get some sleep tonight.
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comtec Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 03:25 AM
Response to Original message
33. *hugz*
:hug::grouphug:
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tavalon Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 03:44 AM
Response to Original message
34. We're here
I wish to hell we could do more than that for you.
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checks-n-balances Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 03:45 AM
Response to Original message
35. Hope you're sleeping well by now, luv
Thanks for reaching out to DU. As far as I'm concerned, we love hearing from you except we wish we could make the pain could go away. It even hurts for you to be typing your message tonight...I'm so sorry. Holding you in both thought and prayer, and we can be with you in spirit.:grouphug:
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Indenturedebtor Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 03:46 AM
Response to Original message
36. Parkinsons must be very hard to deal with
I was on a path in college to pursue graduate studies in neuropscyh, and I met quite a few really smart ambitious people who were going through school to work on treating and hopefully curing Parkinsons. Stem cell research and stimulation by electronic implant are two very promising directions for example! Hang in there! Wonderful and capable people from all over the world are working on a cure as we speak!

In the meantime for this one night be glad you don't live in Tucson! I'm awake right now because we have these things called "kissing bugs" swarming all over the outside of the house. I keep killing them as they get in here. They're basically flying bed bugs that bite your face when you sleep. After they bite you they poop on your face and you scratch the wound, potentially giving yourself an incurable parasitic disease that explodes your heart. Gah don't wanna sleep! Must buy bug zapper! GAH!!!!! Oh their bites also can cause anaphylactic shock and massive swelling. GAH! GAH I SAY!!!!!!
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pepperbear Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 03:48 AM
Response to Original message
37. You have many friends, myself included, and I don't even know you.
I hope we can remedy that. :hug:
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TexasObserver Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 04:09 AM
Response to Original message
38. I wish you had someone there to massage your muscles.
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unhappycamper Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 07:07 AM
Response to Original message
39. Big hugs coming your way from the east coast.
:grouphug:

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OneBlueSky Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 08:58 AM
Response to Original message
40. hey, Autumn Mist . . . as one chronic pain sufferer to another, I know what you're going through . .
are you under the care of a pain specialist? . . . if not, please check out the possibility . . . I suffered for years before I finally gave in and went to the pain clinic at my local rehab hospital . . . they did a thorough work-up and came up with the right combination of medications to keep the pain under control (NOT gone, but liveable), and that has been literally a life-saver for me . . .

yes, they include opiates, but I've learned that while I am indeed dependent on them for daily functioning, I am NOT addicted -- as I feared might happen . . . what happened instead is that I can how function on a daily basis, do some part-time work to earn a little money to supplement the disability benefits, and generally have a reason to keep on living . . . it's a good trade-off, and one I should have made much earlier . . .

good luck, my friend . . . please don't hesitate to search for and find any and all help that may be available to you . . . in this day and age, there's no reason to live in chronic pain . . .
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ThomCat Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 09:29 AM
Response to Original message
41. I am here with you, AutumnMist.
As another DUer with chronic pain, tremors, and insomnia I can empathize with what you're dealing with. :hug:

If you ever want to PM someone to vent or talk, I'm here. :)

Please be as well as you possibly can. Hang in there.
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ThatsMyBarack Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 09:37 AM
Response to Original message
43. Ramble away!
We're all here for you. :grouphug:
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MissWaverly Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 04:40 PM
Response to Original message
44. Hope today is better
Sending prayers your way. Most of the people I have known with serious health problems say that the night is worse for some reason.

:-)

Miss Waverly
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file83 Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 09:14 PM
Response to Original message
45. Well, hopefully group prayers and postive vibes well help...
...even just a little? O8)
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JeffR Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 09:18 PM
Response to Original message
46. We see you so seldom here, and I always wish you could post more
and under far happier circumstances.

Hope things are better tonight.:hug:

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Stinky The Clown Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 09:19 PM
Response to Original message
47. Much has been said.
All of it wonderful. Let me just add ....... :hug:
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Breeze54 Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 09:25 PM
Response to Original message
48. Do you have an IM chat program like Yahoo or MS Chat?
Then you wouldn't have to type at all!!

I have an account at both and I'm sure many here do too.

Maybe trying that, instead of typing at 3 AM would help.

I am sorry you are in such pain, AutumnMist. :(

I hope this disease leaves your body far behind and soon.

In the meantime, I'm glad you're reaching out.

You have people here who care. Try to hang in there. :hug:
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Irreverend IX Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 09:33 PM
Response to Original message
49. There are more people who care about you than you know.
Best wishes.
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lonestarnot Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 09:41 PM
Response to Original message
50. Lots of people here for you A.M.
:hug: :hi:
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elizfeelinggreat Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 09:47 PM
Response to Original message
51. Sorry to hear anyone is in pain
That's hard enough without the insomnia, hope you get some sleep soon.


:hug:
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entanglement Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 09:48 PM
Response to Original message
52. I'm here all night so don't worry...as long as you can tolerate a raging Marxist, LOL
:P :P
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SpookyCat Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 10:07 PM
Response to Original message
53. Hi AutumnMist!
I hope tonight is better for you. My mother had Parkinson's so I know at least what it entails, even though I can't possibly imagine how it feels.

Do you have a support group IRL? That was really important for my mom and my dad, who was her primary caretaker. As many avenues of support as you can get is good.

Otherwise it looks like there are lots and lots of night owl DUers who are there in the wee hours, that's good! I would also recommend one of my favorite writers to you, Christopher Moore. His books are really funny and fairly light but well written...good way possibly to distract you. May I suggest Lamb - The Gospel of Jesus Christ as told by his best friend Biff...or Island of the Sequined Love Nun? Heee! Makes me smile!

Anyway, Big Virtual Hug to you, and I will be spending the next few hours with Puff the Magic Dragon going through my head because of your user name! I love that song!

:hug:
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windbreeze Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 10:47 PM
Response to Original message
54. There are many friends here for you
wishing you well, wishing they could take your pain away..Take care, sending you wishes for recovery, or at the very least an ability to get through the night w/o too much discomfort...:hug: wb
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AZBlue Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 11:43 PM
Response to Original message
55. Hi there! I hope you finally were able to get some sleep.
Have you looked into acupuncture?

The older I get the more I value a combination of homeopathic and western medical approaches. I found this interesting site:
http://www.rewritetomorrow.eu.com/en/complimentaryTherapies/homeopathy/benefits.htm
(I always wonder if the Europeans aren't way ahead of us in medical areas)
as well as this interesting blog:
http://www.blog.parkinsonsrecovery.com/.

There were a lot of resources that google pulled up - one restless night if it doesn't hurt too much to type, you might want to explore the internet.

I'm sorry to hear about your situation - unending pain is so fatiguing, so disheartening and so life-changing. :hug:

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DeepModem Mom Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Jul-31-08 11:56 PM
Response to Original message
56. Just wanted to add a word of support, AutumnMist.
Hope tonight's a better one.

:hi:
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Tindalos Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-02-08 12:50 AM
Response to Original message
58. Hope tonight is better
My father has PD. He's having a bad night tonight too - not many good nights these days. I hate PD for taking my father away from me day by day. It really sucks.

Hope you can get some rest tonight. Take care.



Tindalos

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Liberal_in_LA Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-02-08 01:00 AM
Response to Original message
59. awwwww...hope august will be a better month for you.
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Withywindle Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-02-08 01:06 AM
Response to Original message
61. Aw hon I'm so sorry.
I can relate to insomnia at least - nasty stuff. Please, as far as I know about Parkinson's (via writing by Oliver Sachs and others) it seems the best thing you can do for yourself is have music you love available. Music truly helps.

I'm so sorry it's so cruel and so hard on you. Just know there are hundreds of people here wishing you the best. :hug:
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laylah Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Aug-02-08 04:52 AM
Response to Original message
62. ...
:hug: I am so sorry for your pain and insomnia, AutumnMist. I cannot fathom what you are going through.
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