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New news yesterday, causing me to accelerate the move again.
All about the grandboy. I can't say how grateful I am, regardless of the circumstances, that he came into our care last fall. For years, we saw him failing to thrive. We knew his environment was less than ideal, to say the least. We had no evidence of actual harm, and couldn't get straight answers from his mom.
When he was born, there was trouble with a pulmonary vein; he had open heart surgery several hours after his birth, and spent 3 weeks in a coma. When he was released from the hospital, he was assigned a cardiologist, regular check-ups, etc.; a few months after his release, his mom took off with him, moved in with a drug dealer, and cut us off. We saw him when she said we could, and she brushed aside all questions with "I'm taking care of it." We did not fight for custody, for a variety of reasons.
When we got him this fall, we'd been cut off for months; she refused all efforts to visit with him the previous 6 months. Evidence of long-term abuse and neglect abounded. We jumped through hoops to get him covered by a health plan, took him for a check-up, began work on the "failure to thrive" syndrome, and started backtracking to get his medical records. We couldn't find any record of any of the post-surgery checks he was supposed to have, so we made an appointment with a cardiologist to have a thorough examination. It was a long wait for the appointment; he had it yesterday. They found a problem. He has pulmonary hypertension, caused by some sort of blockage in the pulmonary vein that backs up pressure on the right side of his heart, causing him to have a blood pressure reading that is the same on the right as on the left.
He's scheduled later this month for a catheterization at a children's hospital, where they will determine if the blockage can be removed, what sort of procedure will be needed to remove it, if normal heart function can be restored, or if it is inoperable and will need medication to regulate blood pressure for life. Meanwhile, he can't go to preschool, run around, or engage in any vigorous activity.
His appointment is scheduled for moving day, 1,000 miles away. So today I'm seeing if I can get the sellers of my new place to let me store stuff in the big shop before escrow closes, so I can get out of here before escrow closes down here, and make sure the biggest part of the move is accomplished before he is admitted to the hospital, so that we can be there for him.
I will hold him in the light, and expect that the physical problems will be resolved as easily as possible, and that the whole thing will be covered by insurance. I am more grateful than ever that I chose to take a leave of absence from work at this point. I'll also be focused on achieving the move even more quickly; that may involve a moving company, ((ouch$$$$)), so I'll expect to find a good deal there.
I'm so glad he is with us; if not, this issue may not have ever been addressed, until it was too late.
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