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My father's wife is in the early stages of Alzheimer's.

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Misunderestimator Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-28-05 09:12 PM
Original message
My father's wife is in the early stages of Alzheimer's.
Edited on Wed Dec-28-05 09:15 PM by Misunderestimator
I haven't seen her for a little over a year, and the change has been dramatic. The sad part for my father is that he was my mother's caretaker, who was severely disabled with multiple sclerosis for many, many years, until her death 15 years ago. During the final years of her illness she was bedridden and completely dependent on him. Now, after finally meeting his soulmate in his current wife and having spent these past 15 years with her, he finds himself in a similar position. She is still able to function, but she forgets everything. She didn't remember what she was cooking tonight a few times, then got confused when she pulled it out of the oven, asking where a container was to store it so they could have leftovers for tomorrow. She hadn't realized that we had not yet eaten.

She and my father were both doctors, and the last time I was here we had lengthy and intelligent conversations, which she is incapable of having now. Instead, she talks about how dazed she feels all the time, and she cannot follow any process from A to B. She repeats the same glowing praise for my father every evening, saying that he is a gift and that she is the luckiest person in the world to have him... that she doesn't want to be a burden (this is eerily similar to what my mother used to say, when they weren't yelling at eachother).

My brother and sister-in-law live about an hour and a half away, and we spent most of Monday talking about our options as far as caring for them, should my father, who has heart problems and sleeps with an oxygen tank, deteriorate. He mentioned to us that he has an emergency defibrillator next to his bed in case something happens, but at this point, his wife would not have a clue how to use it. I've encouraged him to, at the very least, get "med-alert" service, and since they live just a few miles from a hospital, and he knows the staff there, it's not a bad situation. But it's become clear that he needs someone around to look after them both.

Meanwhile my father talks constantly about his impending death and what to do if he goes first... and who the executors of his will will be, and what to do if they are both debilitated. He walked me around the house morbidly pointing out what belongs to his wife and what belongs to him. Then he showed me where he filed their wills, and told me that he wants me and my sister-in-law to help organize his things after his death.

We've all encouraged him to get fulltime help to watch over them. Preferably a nurse aide, but even just a live-in housekeeper who could be here in case of emergency while he is still in relatively good health and can continue to do the things he does to care for his wife and himself. He resisted getting such help when my mother was alive, which turned out to be detrimental to everyone, so we are all pretty insistent that he do this. And he can afford to, so it makes no sense not to.

And now he's losing his memory. He doesn't even recall me visiting a year ago, even after reminding him of specific things that happened during that visit. And he asks me nearly every day if I want his grand piano. And I tell him every day that I would love it but that I don't have the room for it.

Sorry for the disjointedness of this... I just needed to vent. Thanks for reading. :)

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DawgHouse Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-28-05 09:20 PM
Response to Original message
1. I am so sorry
We are going through this with DH's Mom. He also lost his Grandmother and Aunt to the same horrid disease. I can't offer any real advice, just wanted to say that I feel for you and I know how difficult this is. :hug:
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Misunderestimator Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-28-05 09:24 PM
Response to Reply #1
3. Thanks.
A hug is always helpful. :) :hug:
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bicentennial_baby Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-28-05 09:23 PM
Response to Original message
2. oh sweetie...
:hug: :hug: :hug: i'm here if you need to talk :)
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Misunderestimator Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-28-05 09:25 PM
Response to Reply #2
4. Aw, you're a sweetheart.
Thanks. :hug: :loveya:
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calico1 Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-28-05 09:29 PM
Response to Original message
5. I am very sorry.
I have an aunt who also has Alzheimer's. She is the youngest child in the family. She lives with my other aunt nearby. We went there for dinner on Christmas day. My aunt used to be very outgoing, independent, the life of the party all the time. She never married but had a full life with lots of friends and a good social life. She is now like a child. She can still have a conversation but she can't talk about anything complicated and has to be repeatedly told what to do, like a child. My other aunt had brought out some dip while we were waiting for dinner and having snacks. It was hard from being in the fridge and my aunt kept breaking crackers. So I got her a spoon and said, "here, use this." So what does she do? She starts eating the dip with the spoon straight out of the container. Its sad and shocking to see a once vibrant person acting this way and knowing they won't be cured. I hope for the best in your situation. How sad for your dad. And for you too, I am sure.
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Misunderestimator Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-28-05 09:33 PM
Response to Reply #5
9. That's sounds very similar...
She's still at a stage where she's actually aware of her memory loss, but she is already childlike and dependent. What's so incredibly sad about this, is that after so much hardship, my father finally met someone who became his best friend and his love, and now he is more of a parent to her, just as he was with my mom. Thanks for your good thoughts.
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CaliforniaPeggy Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-28-05 09:29 PM
Response to Original message
6. End of life issues are so difficult sometimes......
You have my complete sympathies.....
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Misunderestimator Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-28-05 09:42 PM
Response to Reply #6
12. Thanks, Peggy.
I appreciate it.
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Beausoir Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-29-05 10:44 AM
Response to Reply #6
34. They certainly are. And so painful.
I've recently lost both of my parents and my MIL has MD and is really deteriorating.

This decisions are the hardest and most stressful in life.

I know it seems morbid, but I think it was a great thing your dad did by going through the house and pointing out which possessions belonged to who. Any details that can be sorted out while he is still lucid and alive are really helpful.
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rateyes Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-28-05 09:29 PM
Response to Original message
7. I've seen more of that stuff in my profession...
than I care to even think about. I'm sorry this is happening to your father and step-mom, and to you and the rest of the family. The day might come when you will have to step in and force the live-in help, or nursing home care, and it will be hard to do, but it will be for the best.

If we live long enough, we will all be there some day. I've told my children that if the time comes when I need to go into a long-term care facility, and I'm not able mentally to make the decision on my own, not to hesitate to make it for me, but to make sure that the home is one where the nurses really do keep a watch on the residents.

Stay strong. We're here if you need us.
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Misunderestimator Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-28-05 09:45 PM
Response to Reply #7
15. Thanks, rateyes.
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rateyes Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-28-05 10:17 PM
Response to Reply #15
17. You're welcome...
Peace.
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Flaxbee Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-28-05 09:33 PM
Response to Original message
8. My mom is also in the early stages of AD...
Edited on Wed Dec-28-05 09:36 PM by Flaxbee
...and I have to say, for her, the drug Aricept has been absolutely amazing. She is totally bizarre when not on it (when asked "What time is it" she'll reply "30 day money back guarantee" and other totally nonresponsive weird things) but the drug has allowed her at least 2 years of relative normalcy. She's still forgetful (sends me envelopes w/nothing in them) but is a zillion times better than she would be otherwise.

So that's one thing to explore if your stepmom isn't already medicated.

My mom had many health problems before the onset of AD and was physically very frail so she's been in assisted living for 6 years or so, and will be there for the rest of her life. It is very costly (though she's long since run thru all her $$ and is on Medicaid and in a facility that takes social security plus state assistance as payment in full for rent) so the funds are a consideration, but perhaps you guys can start to look for places for both of them to live, if they'd consider it. Not necessarily for now, but maybe for six months or a year from now. My mom's place is really extremely nice (much nicer than the high-rent place she used to be in), and they have double suites for married couples.

Your stepmom will eventually need full time care, and it doesn't sound like your dad will be the one to provide it, so even just looking at assisted living places just for her (& not your dad if he wouldn't want to move) might be good... b/c once an AD patient starts to wander (as many do), unless the live-in nurses can watch her 24/7, she won't be safe. One nurse can't do it all, and your dad just shouldn't have to worry about it esp. if he's also not in the best of health.

Anyway, just a few thoughts. It's hard to go through, I know. You have my sympathies.

edited to remove redundancy
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Misunderestimator Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-28-05 09:42 PM
Response to Reply #8
11. I asked my dad just now what medications she was on...
and she is taking a few... they are set to see her doctor next week, and he said he would look into Aricept... so thanks for that tip. Who knows?

My father does understand that he won't be able to continue living like this for long. They are rather isolated and separate from others on a lot of land, and no close neighbors. It's a recipe for disaster. Going to an assisted living facility is the last thing they would want, but they know it may come to that (and likely will). They are both very accustomed to their isolation and prefer it. I can't even begin to imagine my father in a facility. But... yes. Unfortunately, it's looking like they may need to be reconciled with that option eventually. :(

Thanks for the post... it does help to remember that many, many people are going through this exact thing. I'm sorry about your mother. I hope the best for her and for your family. :hug:
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pokerfan Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-28-05 09:42 PM
Response to Original message
10. Your father needs to talk to an attorney
about living wills, DNR orders and durable powers of attorney. All that fun stuff. I am the middle child of five, but the "responsible one," so it all fell on me when our parents passed. Those documents made it easier for everyone involved.

Sorry to hear about your situation.

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Misunderestimator Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-28-05 09:44 PM
Response to Reply #10
14. He has an attorney...
and has taken care of everything he can. Appreciate the post though. Thanks.
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UrbScotty Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-28-05 09:44 PM
Response to Original message
13. It's important for you to know that we're here for support.
:hug:
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Misunderestimator Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-28-05 09:46 PM
Response to Reply #13
16. Thanks... it helps tremendously.
:hug:
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Name removed Donating Member (0 posts) Send PM | Profile | Ignore Wed Dec-28-05 10:20 PM
Response to Original message
18. Deleted message
Message removed by moderator. Click here to review the message board rules.
 
swag Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-28-05 11:23 PM
Response to Original message
19. I can't think of anything to say except
I wish the best for you and your family.

Strength, peace, and whatever else you need.
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Misunderestimator Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-29-05 07:55 AM
Response to Reply #19
23. Thanks, swag.
Strength and peace will come in handy :hug:
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AzDar Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-28-05 11:27 PM
Response to Original message
20. I lost my Grandmother to Alzheimer's... It is an awful thing. My best
to you and your Family.
D.
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Misunderestimator Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-29-05 07:56 AM
Response to Reply #20
24. Thanks for that.
And sorry for the loss of your grandmother.
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bettyellen Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Dec-28-05 11:37 PM
Response to Original message
21. oh sweetie i am so sorry about this, you might remember my mom's
an AD patient and has been for many years.
a few important things- a geriatric specialist practice or geriatric pscychiatrist of there's one anywhere near them is a huge help.
there are a lot of things that go on between physical problems, the meds for those and mental problems and the meds for those -- all the cross interactions etc, that you really need the resources of a team workup to make a plan and make sure all those meds and treatments work together.
that sort of help is invaluable. it saved my mom's life, and my sanity.
also, Aricept is reallly wonderful stuff, and pretty harmless too. Another thing is make sure their cholestrol levels are watched- high levels make all these brain diseases progress more rapidly.
to make sure they take their meds and handle emergencioes, you have to get someone in there ASAP. there are wonderful caring people who have no credentials but are very responsible, we've had Enid for 4 years, and she is a blessing to us. 24 hours off the books costs as much as two or three hours with a licensed person, and she does everything needed to keep them comfortable. Very often there's a local paper where people seeking this work place ads, in NYC, it's the Irish Echo of all things. heard that through the grapevine. so ask around.
Ask for all the help you need with recommendations and force your Dad to get the help, okay? He'll be grateful you did. I know the inclination is to let him have the final word cause he's your Dad, but it's up to the kids now that he is impared.
Good luck darling, don't hesitiate to PM me with any questions or just to vent, okay?
:hug:
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Misunderestimator Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-29-05 07:53 AM
Response to Reply #21
22. Thanks bettyellen...
My father has made a lot of preparations, including the geriatric psychiatrist. I'm leaving to go home this morning, but I'll talk with him about this. I know that he is VERY interested in having someone stay here with him instead of moving into an assisted living facility. His memory loss appears to be (and has been confirmed by doctors) not associated (so far as they can tell) with anything other than normal aging. My brother and SIL are very determined to do what they can, which might include my SIL giving up her job to move in here. This would be the best of all worlds for everyone and I will discuss this with them again. I'll also start to do some research in this area to see what avenues for home care are available here.

I appreciate your post, and will again mention Aricept as a possibility they should discuss with the doctor next week. And thanks for the encouragement to get help, I'll definitely do all I can. :hug: :loveya:
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Misunderestimator Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-29-05 09:27 AM
Response to Reply #21
30. Apparently the drug she is taking is the same as Aricept...
called Razadyne. But she's been on it only five weeks which may not yet be long enough to see any dramatic results. Keeping my fingers crossed. I mentioned again to him this morning about 24/7 care, as well as the possibility of my brother and SIL moving here at least temporarily, which could work for them, as my father is actually closer to my brother's job location.

Thanks again for your post and pm. :hug:
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bettyellen Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-29-05 02:23 PM
Response to Reply #30
35. It does take a while to kick in.... and also
there's the very real possibility that she has taken it only haphazardly since she is not supervised, that and proper hydration and nutrition that a caregiver will also see to, is going to make all the difference. Once I told my brother he had to hand out the pills himself, things improved a great deal.
Assisted living is great for a lot of the elderly and infirm, but AD patients get a bit of a raw deal, I'm afraid. At a certain point, it overwhelms the staff and the use of restraints is very common. That's reason #1 my Mom is at home. If you or your brother are going to look at any facilities, you have to ask to see the "levels" where they keep middle and end stage AD patients to get the real picture. They often want to show you just the parts that would make you feel good about putting them there, the lower floors are generally the nicer ones. You have to insist they be real with you about it. They're salesmen, you know. When my Mom went through this, everyone pushed me very very hard to put her in. Thank god her Doctor encouraged us to really look at the options and see ourselves what they would mean.
I am so glad he has a geriatric psychiatrist, just remember he is there for the family as much as for the patient. He will help you make sure the situation is under control, he will help you both cope.
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bettyellen Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-29-05 03:08 PM
Response to Reply #35
36. also good to ask is what supplements if any
are safe and my help some. Antioxidants (E) and Ginko are sometimes recommended, but you may as well bring it up and get them vetted while they are formulating a plan. You need to put together a master list of medicines and dosages w/ the pharmacy and docotrs contact #'s on one page to be copied for your the patient and their kids, the caregiver, etc. Trust me, it's invaluable.
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Midlodemocrat Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-29-05 08:23 AM
Response to Original message
25. I am so sorry.
My dad passed last year from Alzheimer's. It is very hard on the family. You are in my thoughts and prayers.

:hug:
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Misunderestimator Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-29-05 09:16 AM
Response to Reply #25
27. Thanks so much, midlo.
And I'm sorry about your dad. :hug:
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billyskank Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-29-05 08:36 AM
Response to Original message
26. It's a very cruel end
sorry Misu. :( :pals:
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Misunderestimator Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-29-05 09:17 AM
Response to Reply #26
28. Thanks billy
:pals: My father and I have had a good conversation about things this morning at least. It's been helpful reading the responses here.
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sniffa Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-29-05 09:23 AM
Response to Original message
29. ...
:hug:
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Misunderestimator Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-29-05 09:51 AM
Response to Reply #29
31. ...
:pals: :hug:
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La Lioness Priyanka Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-29-05 10:33 AM
Response to Reply #31
32. ....
:hug:
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Misunderestimator Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-29-05 10:42 AM
Response to Reply #32
33. ....
:hug: :)
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AnarchoFreeThinker Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-29-05 03:16 PM
Response to Original message
37. Sorry, Misunderestimator.
I hope 06 brings new solutions and fewer problems. Unless I'm missing something, I think you're an incredibly strong person, that your family has come to depend on you for good reason, and that you're equal to the challenge. Good thoughts for your soul and your family.
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Misunderestimator Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-29-05 10:10 PM
Response to Reply #37
39. Thank you dms...
That was a very sweet post. I appreciate it.
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johnnie Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-29-05 03:22 PM
Response to Original message
38. .
:hug:

I'm so sorry to hear this. Like many here, my family dealt with Alzheimer's. Hang in there.
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Misunderestimator Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Dec-29-05 10:11 PM
Response to Reply #38
40. Thanks, johnnie
Edited on Thu Dec-29-05 10:13 PM by Misunderestimator
:pals:
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