I really don't think this year can get worse......{{{hugs needed}}}

[kittycat1164]

not only am I having this shit with my left arm and wrist, but today I had a grand mal seizure. I had brain surgery 2 1/2 years ago after having seizures all my life. At one point I was taking 16 pills a day without being controlled. After surgery in June of 2002 I hadn't had a seizure since. It was gone, but then today at work I went down and had a grand mal for 4 or 5 minutes. God dammit, I only got my driving privelages back in October, and now it's all gone again. FUCK FUCK FUCK. What the hell did I do to deserve this shit?

[zbird]

1. Oh, kittycat1164, I'm so sorry.

I hope this was an isolated incident for you. It really sucks that you'll lose your driving privileges. My husband is starting a neuro workup for unexplained loss of consciousness (several episodes). He's a truck driver (or at least he used to be, until this happened). It's scary.

Hope you have a good support system behind you too.

[kittycat1164]

2. I do thank God

it just sucks so bad. I really thought it was gone, god, and then get blind-sided, not to mention the damn side effects of what I'm being put on. I just can't stop crying and I'm not a crier.

on edit: not to mention I chewed the *hell* outta my tongue while seizing so it's cut up pretty bad. *sigh* Thank God I have the percocettes from my wrist/arm. Every muscle in my body hurts.

[tridim]

3. That sucks.. I'm really sorry

My dog has (had) seizures too due to epilepsy.. She just stopped having them after the new year thanks to the Potassium Bromide added to her Phenobarbital regimen. Is that what you take? I'm interested because of the side effects, which aren't so pleasant dogs.

Anyway, I hope it was just a fluke seizure today.

[kittycat1164]

7. over the course of my life I've run the gammit

This time he's given me trileptal. That's one I've never tried, here's what I have to look forward to:


-an allergic reaction (difficulty breathing; closing of the throat; swelling of the lips, tongue, or face; or hives);
· symptoms of low blood sodium (nausea, general discomfort, headache, extreme drowsiness, or confusion);
· central nervous system effects (difficulty with concentration, speech, or language; excessive sleepiness or fatigue; a loss of coordination or trouble walking);
· double vision, nystagmus (back-and-forth movements of the eyes), blurred vision, or other visual disturbances; or
· increasing frequency or worsening of seizures.
• Other, less serious side effects may be more likely to occur. Continue to take oxcarbazepine and talk to your doctor if you experience
· headache;
· mild sleepiness or fatigue;
· nausea, vomiting, or stomach pain;
· tremor;
· dizziness;
· rash;
· diarrhea, constipation, or decreased appetite;
· weight gain; or
· dry mouth.

[efhmc]

4. First, you don't deserve it. Next, I am so, so sorry, Finally, try to find

why what was working is now not. Blessings and my best wishes for better days.

[ayeshahaqqiqa]

5. I'm so sorry!

I hope they can figure out what is going on so you don't have another seizure.

[rogerashton]

6. Hang in there. Tomorrow will be better.

If my EKG is OK on Saturday I can get off the "prophylactic" anti-seizure pills in about 10 days.

Fell down and busted my head. Is that dumb or what?

But I'll get well. I believe that. You will too.

[kittycat1164]

8. I will keep *very* good thought for you

It's just so depressing and I'm trying to keep OK in front of my kids (two girls 11, 13) actually, they're taking it worse than me - if that's possible, hell, I've never seen a seizure, they have. I've only been on the other side of one, Poor things. pretty scary for them to witness.

[rogerashton]

10. You should see what my poor darlin' wife has been through.

There are tears in my eyes for her and your daughters. No foolin'.

[Zomby Woof]

9. I am sorry

I hope this was a rare reoccurrence, and that your arm and wrist get better too. :hug:

[LynzM]

11. I'm so sorry to hear that

That must be so frustrating to think they are gone and then to have one again :hug: I hope that it is an isolated thing for you, and that the meds aren't too bad on your body.

[HEyHEY]

12. It's only January there's plenty of time for it to get worse

Cheer up ;-)

[kittycat1164]

19. always an optimist huh HEyHEy. You made me laugh

Thank you for that.

[bigwillq]

13. (((HUG))))

Sorry about your bad day.
I hope things improve for you.:hug:

[Padraig18]

14. {{{{{{{{{{HUG}}}}}}}}}}

I'm so sorry.

:hug:

[ScreamingMeemie]

15. All I can do is....

:hug: I hope it's better for you too. That's just not fair.

[Wapsie B]

16. Hugs to you.

I'm really sorry you're going through this. More than one person should have to bear.

[cags]

17. So sorry, my mom has had to go through that and its not fun

It wasn't fun for us kids either, her being a single mom and all. She's gotten into natural medicine now and I don't know what she is taking but she rarely has seizures anymore, and is happy that she doesn't have to deal with the side effects of the prescription medicine. It might be worth it to try a homeopathic doctor, since it it such a hard thing to live with.

[fluffernutter]

18. i'm so sorry. hugs to you, hun

:hug:

[leftofthedial]

20. I'm so sorry. Hang in there.

i'm having the worst year of my life too. All we can do is keep trying.

You will triumph!

[kittycat1164]

23. I 'spose it IS better than the alternative

but I can't help but wallow for a few. Thank you for your words and hope yours improves too. :hug:

[ikojo]

21. kittycat1164, I assume you were born in 1964? My younger brother

was born in 1964. He had epilepsy when he was a kid. He, thankfully, outgrew it but I think the meds he took for the epilepsy screwed up his brain chemistry and led to his lifelong battle with depression.

I wish I had words of comfort.


Here is a cyber hug...I hope it helps. :hug: :hug: :hug: :hug: :hug: :hug: :hug: :hug: :hug: :hug: :hug: :hug: :hug: :hug: :hug: :hug: :hug: :hug: :hug: :hug: :hug:

[Skittles]

22. my sweet kittycat

*sigh*

I am so sorry and I have no idea why such things happen to great people. Stick with us here, you know we care.

[kittycat1164]

24. Thank you Skittles, it's appreciated soooo much.