In 1994, the
New England Journal of Medicine published a two-part study titled "Medical Aspects of the Persistent Vegetative State."
If you go to their website, you can register for free and see the entire text, since it is older than six months (have to be a paid subscriber to see newer articles). I have just read both parts.
I'm glad I did. It only verifies that removing her feeding tube and allowing her to pass on peacefully (she does not and cannot feel pain) is the humane and sensible thing to do in her case. In fact, it probably should have been done as long as five years ago (and would have, were it not for all the legal wrangling, jeb bush, etc). Why do I say that? Just read the quotes I have below from the article (these are single sentences, not paragraphs, but I will be careful not to violate copyright):
"In 1989, the American Academy of Neurology published a position paper that defined persistent vegetative state, classified artificial nutrition and hydration as forms of medical treatment, and stated that
patients or their surrogates could decide to terminate treatment and that there were no medical or ethical distinctions between withholding and withdrawing treatment."
"A patient in a persistent vegetative state becomes permanently vegetative when the diagnosis of irreversibility can be established with a high degree of clinical certainty -- that is, when the chance that the patient will regain consciousness is exceedingly small."
(According to what I've read, it's amazing she's even still ALIVE 15 years after this happened, and after one year in a persistent vegetative state, your chances of coming out of it are almost nothing. Since she's been in it 15 years--past the life expectancy for most people in her condition--I think you'd be very safe in saying she is in a PERMANENT vegetative state.)
"Recovery of consciousness after three months is rare in adults and children with nontraumatic injuries."
(Hers was not caused by injury, thus nontraumatic.)
"Despite the preservation of hypothalamic and brain-stem function, the severe neurologic injury necessary to produce the vegetative state in adults and children reduces the average life expectancy to approximately two to five years. Survival beyond 10 years is unusual."
(This one is a whole paragraph--)
"A very small number of well-described patients in a persistent vegetative state have survived for more than 15 years (data available from the task force), including three patients who survived for more than 17, 37, and 41 years. Considering the small total number of patients in a persistent vegetative state, the probability that an individual patient will have such a prolonged survival (i.e., over 15 years) is exceedingly low, probably less than 1 in 15,000 to 75,000 (calculations available from the task force)."
The shortened life expectancy of those in a PVS are due to respiratory and urinary tract infections (they are incontinent and have no bowel control), and generalized systemic failure. (This is my paraphrase, not a quote.)
Do they feel pain?
"As noted in the first part of this article, extensive clinical experience, the results of positron-emission tomographic (PET) studies, and neuropathologic examination support the belief that patients in a persistent vegetative state are unaware and insensate and therefore lack the cerebral cortical capacity to be conscious of pain. Almost all such patients have some degree of motor activity and eye movement that would be capable of signaling conscious perception of pain or suffering if such existed."
In other words, no. They are insensate.
"Therapy aimed at reversing the persistent vegetative state has not been successful."
And lastly:
"When artificial nutrition and hydration are withdrawn, patients in a persistent vegetative state usually die within 10 to 14 days. The immediate cause of death is dehydration and electrolyte imbalance rather than malnutrition; patients in a persistent vegetative state cannot experience thirst or hunger. Except for dryness of the skin and mucous membranes, it is not readily apparent to family or health care professionals that a patient in a vegetative state is dying of acute dehydration. Such patients also do not manifest the characteristic signs of malnutrition after depletion of nutrients over a prolonged period."
The article also discusses maintaining the dignity of the patient.
Here is the link to the abstract:
http://content.nejm.org/cgi/content/short/330/21/1499